1 / 17

A STRONG PATIENTS’ VOICE TO DRIVE BETTER HEALTH IN EUROPE

EPF Regional Advocacy Seminar Budapest, 25 October 2010. A STRONG PATIENTS’ VOICE TO DRIVE BETTER HEALTH IN EUROPE. Who are we ?. VISION – high quality, patient-centred equitable healthcare throughout the EU

Download Presentation

A STRONG PATIENTS’ VOICE TO DRIVE BETTER HEALTH IN EUROPE

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript


  1. EPF Regional Advocacy Seminar Budapest, 25 October 2010 A STRONG PATIENTS’ VOICE TO DRIVE BETTER HEALTH IN EUROPE

  2. Who are we ? • VISION – high quality, patient-centred equitable healthcare throughout the EU • MISSION – to present a strong and united patients’ voice 150 MILLION PATIENTS, almost 50 members • GOALS • Equal Access • Patient Involvement • Patients’ perspective • Sustainable patient organisations • Patient Unity

  3. Objectives • Building capacity • Strengthening our policy impact • Harnessing patients’ own evidence • Extending our membership • Developing communications and partnerships • Diversifying the funding base • CONSOLIDATION AND GROWTH • ECONOMIC and SOCIAL CRISIS

  4. Achievements 2009/2010 EQUAL ACCESS FOR PATIENTS • EPF Seminar on Health Technology Assessment and Annual General Meeting • Major policy themes • Patients Rights in Cross Border Health Care • Patient Safety • Pharma Package • E-health / Telemedicine • Clinical Trials • Medical Devices

  5. Achievements 2009/2010 PATIENT INVOLVEMENT • “VALUE +” on the meaningful involvement of patients in EU health projects • 3 core deliverables widely distributed, translations • Landmark conference under the Swedish Presidency, Gothenburg December 2010 • Ongoing success – DG RESEARCH, IMI • EPF representation in major EU level health Forums, Consultative Committees and Working Groups doubled in the last year

  6. Achievements 2009/2010 PATIENT INVOLVEMENT • Leadership of a parallel session on Cohesion Policy / Structural Funds at the Open Health Forum, June 2010 • Positions EPF at heart of campaign work to ensure Health ( + patients) is a key feature in current and future programming • Enhanced credibility – SANCO and fellow stakeholders • Concrete application – Value+ products / resource for patients

  7. Achievements 2009/2010 PATIENTS’ PERSPECTIVE • EPF Manifesto “150 Million Reasons to act” campaign- outreach work with/by our members • EPF – speaker ,chair or moderator in over 50 EU health meetings each year - ensuring or safeguarding the patients’ perspective • Active support 120 MEPs - all EP Groupings - close relationship with key rapporteurs on main health dossiers • Continued strong input in European Medicines Agency • Continued alliance building with health professionals and other health stakeholders

  8. Achievements 2009/10 SUSTAINABLE PATIENTS ORGANISATIONS • Significant political work on core funding from the European Commission • Diversification is key – new EU projects, new corporate partners – pharma, MD, IT, Foundation funding • Membership Guide and Review of EPF by members • Regional Advocacy Seminar in Sofia – 50 patient leaders from Bulgaria and neighbouring countries • This Regional Advocacy Seminar focus – young patients – development of a youth strategy

  9. Achievements 2009/10 PATIENT UNITY • Extension of the membership to 44 Members – 6 more expressions of interest • Focused work where no national platform e.g Portugal • Policy Advisory Group – operational – key resource • Strong relationship with allies - European Cancer Patient Coalition, IAPO

  10. Communications • New Website Launch – February 2010 • Accessibility – Approved by HON • Content Management System • Social Media Strategy • ePlatform for young patient leaders ? • YouTube – in house and external videos • New Look EPF Mailing – based on members’ review

  11. LOOKING FORWARD 2011 and beyond

  12. Maintaining Momentum • Patients Rights in Cross Border Healthcare • Next Milestone – Belgian Presidency Event 1 December, eve of Second EP Reading • Pharmaceutical Package • Information to patients remains controversial dossier -some inroads, • Pharmacovigilance and anti-counterfeiting-adoption imminent – need to explore next steps – PI in transposition • Clinical Trials Directive • Health Technology Assessment • eHealth • Health Inequalities – Health Literacy

  13. New Policy Dossiers • Needs and rights of Older Patients • Adherence to medicines / concordance • Personalized Medicines • Medical Devices • Non – Discrimination legislation • Bridging prevention and chronic disease management • Moving forward with conclusions from this meeting - Youth strategy NEW!

  14. New Project Dossiers • eHealth Governance and Thematic Network • Chain of Trust – building confidence and acceptance in telemedicine solutions • Interquality – Maintaing quality and sustainability of health care systems • Joint Action on Patient Safety and Quality of Care • IMI project consortium – education and communciation of pharmaceutical research to patients • FP7 project on communicating health research to patients NEW!

  15. Milestones in 2011 • Annual General Meeting (Spring) capacity building and open space for members’ networking, Brussels • Regional Advocacy Seminar in Romania – Focus – collaboration with Health care Professionals • Meeting the needs of older patients – Polish EU Presidency Conference – second semester • Policy Advisory Group and Patient Evidence Base Workshops

  16. 2014-2020 Next EU Programming Period Major focus – meaningful patient involvement • New EU Public Health Programme • 8th Framework Programme on Research and Development ( health component) • Cohesion Policy and Structural Funds • Health in All Policies 2011 – development of campaign strategy and partnerships

  17. Key messages • EPF is making a measurable difference • Our strengths • our members’ expertise, experience and solidarity • our uniquely patients’ perspective • our commitment to partnership • We value your participation in this seminar and look forward to an ongoing collaboration • The young patient’s voice in EPF Forward Moving Together

More Related