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CINCH: Clinical Investigation of Neurological Channelopathies

CINCH: Clinical Investigation of Neurological Channelopathies. Nine centers in CINCH One of ten consortium Rare Diseases Network Data Technology Coordination Center (DTCC). NIH CINCH sites:. Rabi Tawil, M.D., Site PI, Univ. of Rochester

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CINCH: Clinical Investigation of Neurological Channelopathies

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  1. CINCH: Clinical Investigation of Neurological Channelopathies • Nine centers in CINCH • One of ten consortium Rare Diseases Network • Data Technology Coordination Center (DTCC)

  2. NIH CINCH sites: • Rabi Tawil, M.D., Site PI, Univ. of Rochester • Anthony Amato, M.D., Site PI, Brigham and Women’s Hospital • Robert Baloh, M.D., Site PI, UCLA • Richard Barohn, M.D., Site PI, Univ. of Kansas Medical Center • Stephen Cannon, M.D., Ph.D., Site PI, UT Southwestern at Dallas • Marinos Dalakas, M.D., Site PI, NINDS • Louis Ptacek, M.D., Site PI, UCSF • Michael Hanna, M.D., Site PI, National Hospital, Queen Square • Angelika Hahn, M.D., Site PI, London, Ontario

  3. CINCH: International Conferences on Channelopathies • Periodic paralysis - 2005 • Episodic ataxia - 2006 • Non-dystrophic myotonias - 2007

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