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IBD’s Impact on Youth Life

IBD’s Impact on Youth Life. Presented by: The Gutsy Generation. What Is IBD?. Crohn’s Disease and ulcerative colitis are the two most common forms of Inflammatory Bowel Disease (IBD) IBD is an autoimmune condition Crohn’s disease can affect any part of the digestive system

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IBD’s Impact on Youth Life

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  1. IBD’s Impact on Youth Life Presented by: The Gutsy Generation

  2. What Is IBD? • Crohn’s Disease and ulcerative colitis are the two most common forms of Inflammatory Bowel Disease (IBD) • IBD is an autoimmune condition • Crohn’s disease can affect any part of the digestive system • Ulcerative colitis occurs in the colon

  3. Who Does It Affect? • Over 200,000 Canadians • Canada has highest prevalence of IBD in the world • Anyone can be affected • Ages 15-24 • Most prevalent in Maritimes/Newfoundland

  4. How Does It Feel? • Stomach pains • Frequent trips to the washroom • Weight loss • Fatigue • Other side effects

  5. Living with IBDIs there a Cure? • No known cause or cure • Remission/Flare ups • Lifestyle changes • Diet • Medication • Surgery

  6. Coping with the Emotional Affects of IBD • Feeling alone • Embarrassment • Taboos • Left hiding in the stalls • Constant worry

  7. Complications in School Life • Missing classes and assignments “You’re so lucky” • Fatigue and motivation • Playing catch-up • Feeling out of the loop • An ‘invisible’ disease “But you look fine”

  8. Relationships with Friends • Support / Lack of support • Understanding / Misunderstandings • Possible limitations • Missed adventures • How friends can help • Eg. Hospital stays

  9. Surviving & Thriving • IBD has many defining characteristics • BUT remember: It does not define a person! • Lifestyle changes • Finding new hobbies • Creating new habits • Learn to manage both body and disease

  10. Taking Action What Can You Do? • Get informed • Create awareness about IBD • Help educate others • Volunteer with the CCFC • Participate in a CCFC fundraiser • Join The Gutsy Generation

  11. What Is The Gutsy Generation? • An identity for youth affected directly or indirectly by IBD • Created by youth – for youth! • Great way to connect with other youth • Fun & interactive! • Action * Support * TeamWork * Exciting * Gutsy • www.thegutsygeneration.ca

  12. Volunteer Opportunities • CCFC Event Volunteer (One day) • CCFC Taskforce Member • Member, The Gutsy Generation • Event Organizer, The Gutsy Generation • Start a ‘Gutsy Generation Club’ • “CCFC Youth Voice” • Youth Advisory Council Member

  13. Get Gutsy Get InvolvedTouching the lives of others… • Help other YOUTH • Over 200, 000 Canadians • Future IBD patients • Your family and friends

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