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Sandra Realpe Ethics Officer realpe@cohred Edlyn Jimenez-Santos Ethics Fellow

Global Forum on Bioethics in Research First Meeting for the Eastern Mediterranean and Arab Forum on Bioethics in Research Cairo, Egypt. 12 – 14 August 2008. Sandra Realpe Ethics Officer realpe@cohred.org Edlyn Jimenez-Santos Ethics Fellow jimenezsantos@cohred.org GFBR-Secretariat

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Sandra Realpe Ethics Officer realpe@cohred Edlyn Jimenez-Santos Ethics Fellow

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  1. Global Forum on Bioethics in ResearchFirst Meeting for the Eastern Mediterranean and Arab Forum on Bioethics in ResearchCairo, Egypt. 12 – 14 August 2008 Sandra Realpe Ethics Officer realpe@cohred.org Edlyn Jimenez-Santos Ethics Fellow jimenezsantos@cohred.org GFBR-Secretariat Geneva,Switzerland

  2. Outline • Introduction to the GFBR • Mission, Aims • GFBR Meetings • GFBR Partners • GFBR Secretariat • Elements for a framework to facilitate a Global Forum

  3. Mission & Aims Mission: Bring together key stakeholders from developing, developed countries to debate the ethics, social, legal, and public policy issues related to health research in international settings Aims: • Strengthen the protection of human participants in international health research • Provide a forum for developing country perspectives on ethical issues in research • Build capacity for ethical review of research • Encourage the long-term joint management of research protocols

  4. GFBR Meetings

  5. Institut national de la santé et de la recherche médicale GFBR Partners

  6. GFBR-Secretariat Funded through a 2-year grant from the Science and Society programme  of the Sixth Framework Programme for Research (FP6) of the European Commission [Project name: Health Research Ethics] Hosted by the Council on Health Research for Development (COHRED) Managed by a part-time ethics officer, assisted by a full time fellow from a developing country Communication pathways: GFBR Newsletter and GFBR websitewww.gfbronline.com

  7. Elements for a framework to facilitate a Global Forum Rationale The context of health research continues to evolve as it increases in number worldwide. With this evolving context comes emerging ethical issues pertinent to the design, management, and governance of research involving human participants, which challenge various stakeholders' capacity to keep up or stay ahead. Increasing multi-centered research, rates of migration, innovations in biotechnology, and investments in genetic research, among others, signify a global research context posing global challenges. Thus, a global platform of discussion/solutions is indicated.

  8. Elements for a framework to facilitate a Global Forum Challenges • International ethical guidelines prescribe principles that most stakeholders agree on. However, disagreements lie in the application of these principles • Potential for conflict - discussions on research ethics are often polarised among research stakeholders Opportunity To benefit from these challenges, they must be re-appropriated to stimulate dialogue

  9. Elements for a framework to facilitate a Global Forum Invitation • Dialogue needs a venue where there is no expectation of an immediate resolution of conflicting opinions, but an occasion for airing the most relevant issues emerging in the international arena of bioethics in research • Venue must facilitate a discussion of disagreements where all voices are heard • Dialogue can be a powerful tool for promoting collaboration among the different stakeholders in health research ethics, and stimulate rethinking and better informed arguments • Dialogue has a potential for influencing good research practice

  10. Thank you! شكرا لك

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