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KCNQ2 Help Pass “H.RES.298 Raise Awareness For Epilepsy”. By: Nick Schneider Mason Moorhouse Nehemiah Heckler. What is KCNQ2?. KCNQ2 is a gene involved in the proper functioning of a potassium channel in the brain. This has been associated with seizures.
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KCNQ2Help Pass “H.RES.298 Raise Awareness For Epilepsy” By: Nick Schneider Mason Moorhouse Nehemiah Heckler
What is KCNQ2? • KCNQ2 is a gene involved in the proper functioning of a potassium channel in the brain. This has been associated with seizures. • KCNQ2 has been related to BNFC (Bengin Familial Neonatal Convulsions). Where babies begin to have seizures right after birth, but stop within 7 months, and runs in the family. • This makes it very closely related to epilepsy.
17 hours after birth, Jack started having seizures in NICU • Multiple tests were done with no real solution • So Jack’s army was created! Jack Pribaz
Jack’s army is trying to raise awareness and money for a problem with no answer. • A new foundation formed by a family with a personal connection. • A well known social studies teacher and coach at Wheaton North High school, Mr. Pribaz.
And for what? • A family that wants their son and brother to be able to get help • A father that wants to raise money for his son’s cause • And a teacher that wants the word to get out • And students willing to help
Our Goal • Get the H.RES. 298 bill passed • A bill to get funding for epilepsy • We will hope to add a write on for the funding of KCNQ2
Progress • There is no cure. • Mostly because there is no funding for research! • Children and families in Jack’s situation are receiving no help. • Wheaton North High school is working hard to help the Pribaz family in hopes that someday, Jack will be cured.