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Development of the BEFG-ASD - Supporting professionals and parents of children with ASD

Development of the BEFG-ASD - Supporting professionals and parents of children with ASD. Noor Safiza Mohamad Nor PhD student / Paediatric Dietitian Institute of Health and Society Newcastle University DASLNE Conference 23 rd May 2012.

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Development of the BEFG-ASD - Supporting professionals and parents of children with ASD

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  1. Development of the BEFG-ASD- Supporting professionals and parents of children with ASD NoorSafizaMohamad Nor PhD student /Paediatric Dietitian Institute of Health and Society Newcastle University DASLNE Conference 23rd May 2012 Institute for Public Health, National Institutes of Health Ministry of Health Malaysia

  2. Why identify feeding problems and GI symptoms ? • Problems may be similar to typically developing children but more frequent, persistent and longstanding in children with ASD • Contribute to psychosocial and financialimpactfor children and families • Management of these problems likely to be challenging • Professionals in the community needs to identify and clarify these issues in a systematic way, to engage discussion with parents • No structured questionnaire addressing both problems and the impact –for professionals in the community ( health and education settings)

  3. Aims of research • To develop a Brief structured questionnaire for the Early identification of Feeding problems and Gastrointestinal(GI) symptoms in children with Autism Spectrum Disorders, and the impact of these problems (BEFG-ASD) • Interview based questionnaire for use by a range of professionals in the community An information pack was developed together with the BEFG-ASD

  4. Methods • Involvement of experts: • Professionals • Parents DEVELOPMENT OF BEFG-ASD PHASE I 2009-2010 • Health professionals • Teachers/Teaching assistants • Community workers • Parents PHASE II 2010-2011 FIELD TESTING OF BEFG-ASD PHASE III 2011-2012 • Reliability and validity analyses • Telephone interview with professionals EVALUATION OF BEFG-ASD

  5. RESULTSSECTIONS AND QUESTIONS OF THE BEFG-ASD B GI SYMPTOMS • Abdominal pain (not associated with constipation) • Diarrhoea • Chronic constipation • Toileting problems • Frequent vomiting • Weight issues • (9 Questions) • use of Bristol Stool Chart A FEEDING PROBLEMS • Food selectivity • Food sensitivity (physical food characteristics) • Food sensitivity (child’s food environment) • Problematic mealtime behaviours • Food neophobia • Signs of pica • Parental dietary practices • ( 25 Questions) C IMPACT • Impact of feeding problems • Impact of GI symptoms • (parent’s life, stress, financial, family life) • (8 questions) • - details of impact

  6. Feeding Problems (N=73) 62 % parents did not receive professional advice on feeding problems or child’s diet

  7. Discussion and conclusion • Questionnaire development : mixed qualitative and quantitative approach • Commitment from professionals and parents was impressive Professionals : 48 Parents :74 • BEFG-ASD can be used by a range of professionals in the community to support children with ASD and their families • Multidisciplinary team approach in managing feeding problems

  8. THANK YOU FOR YOUR SUPPORT!!!

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