Anna Jasiówka Centre for H ealth S tatistics Statistical Office in Krakow

1. Transplantology in theMałopolskavoivodship.Analysis of results from a pilot project conducted by the Statistical Office in Krakow. Anna Jasiówka Centre for Health Statistics Statistical Office in Krakow

2. Table of contents • Transplantation definition • Legislation systems • Transplantation problems • Organ donation activity in Poland and Małopolska voivodship in 2010 • Pilot project in Małopolska voivodship conducted by the Statistical Office in Krakow

3. Transplantation • removal of organs, tissues and cells of the human body in order to save or prolong life of person with end stage of particular organ incapacity • organs from 1 donor can save up to 8 people • 2 organ donor types • deceased donor – a person who has recently died • living donor – adult relatives, partner or close friends with emotional investment

4. Legislation systems • 2 main systems • „Opt in” – anyone who has given consent is a donor(ex. Germany, Greece) • „Opt out” – anyone who has not refused is a donor (ex. Austria, Belgium, Poland, Spain, Sweden) • lack of correlation between the legislative system and the rate of donation

5. Transplantation problems (1) • insufficient number of donors (organs) • insufficient information flow among health care units • improper care over potential donor – destruction of organs • long time period between operation on donor and succeeding operation on recipient

6. Transplantation problems (2) • improper coordination of transplantation activities • post transplantation infections • rejection of transplanted organs • financial limitations • complicated administrative procedures

7. Organ donation activity in Poland and Małopolskavoivodship in 2010 Source: Polish Transplant Coordinating Centre – Annual Report 2011

8. Deceased organ donors in 2010

9. Number of deceased organ donors per 1 million of population Source: Polish Transplant Coordinating Centre – Annual Report 2011

10. Pilot project in Małopolskavoivodship conducted by the Statistical Office in Krakow

11. Projectdesign • Aim: identification of attitudes towards transplantation by examination of knowledge, willingness to donate organs for transplantation purposes, opinions on organ procurement and experience with respect to organ donation • Tool: a standardized questionnaire developed for the purpose of the project on the basis of empirical and theoretical literature in the field as well as previous studies • Sample: 938 Malopolskavoivodships’ inhabitants aged 18 years of age • Method of analysis data: bivariate analysis using Chi-square test, the significance level p<0,05 • Project conducted in January 2011 by interviewers from the Statistical Office in Krakow

12. Project characteristics • Completeness: 82,5% (774 people out of 938 to whom questionnaire was dedicated) • Main reasons of non participation in the project: • Refusal to take part in the project • Temporary absence in residence place • Influence of disease or/ and age • General characteristics of respondents: • Age: mean age 45 years +/- SD 17,3 years • Gender: men 46,8%, women 53,2% • Residence place: rural area 58%, urban area 42% • Education: below secondary 49,7%, secondary 32,7%, higher 17,6%

13. Acceptance of transplantation procedures

14. Respondents’ opinion about

15. Respondents’ knowledge about definition of human death

16. Respondents’ conversations with relatives, friends

17. Respondents’ decision with regards to relative’s organs donationdepending on knowledge of the relative’s wish

18. Important decision factors

19. Important decision factors

20. Summary (1) • In Małopolskavoivodship, there is one of the lowest indicator of deceased organ donors per one million of population - in 2010 it was 3,9. In comparison the indicator for Poland was 13,3 • Małopolska inhabitants have positive attitudes towards transplantation and organ procurement • Low educated iinhabitants of rural areas have insufficient knowledge about transplantation and organ procurement • Most of the Małopolska inhabitants have heard about organ donor card • Majority of respondents have not talked with relatives and friends about their wishes with respect to organ procurement

21. Summary(2) • Knowledge about relative wish with respect to organ procurement has significant impact on the decisions made by families to give consent for the extraction of relatives’ organs • Solidarity is one of the most important factors determining declared consent for the extraction of respondent’s as well as relatives’ organs

22. Thankyou for theattention