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Do you want to be involved?

Learn about patient involvement principles, ways to engage, and examples from the North, emphasizing the importance of inclusive, timely, and recognition-driven practices. Explore how patients can collaborate in redesigning cancer services and improve care. Discussion scenarios are provided for interactive engagement.

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Do you want to be involved?

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  1. Do you want to be involved? Carol Nevison Engagement and Volunteering Manager May 2017

  2. What I will cover … • What is ‘patient involvement’? • Principles for involvement • Different ways you can get involved • Examples from around the North

  3. Using your experience

  4. Why is this important? • More services that meet the needs of patients • Patients and carers as equal partners in the design and delivery of their care • One size fits no-one • This puts the patient at the heart of the redesign of cancer services.

  5. Principles for patient involvement OPPORTUNITIES INCLUSIVE TIMELINESS

  6. Principles for patient involvement RECOGNITION COMMUNICATION POSITIVE OUTCOME

  7. Full screen image slideSecond line if required

  8. Ways to be involved • Informing: receive leaflets, newsletters, posters, be on email lists • Consulting: complete surveys and questionnaires either written or face to face interviews • Involving: work directly with health care professionals on projects and groups to provide views on improving services • Collaborating: joint decision making, sitting on advisory boards

  9. Full screen image slideSecond line if required

  10. Involvement in the North – ExamplesCancer Partnership Group – Mid Yorkshire Hospitals • The group consists of people living with cancer and their carers with a focus on supporting the work of the clinicians, nurses and managers in improving cancer services. • Group members are involved in areas such as patient experience, patient care, patient information, peer review and facilities. Achievements include: • Contributed to the production of a cancer directory of local and national information at the request of patients • Worked collaboratively with clinical nurse specialists to establish patient support groups • Award winning implementation of patient discussion records

  11. Some others include … • Patients and carers sharing their stories, taking part in interviews to help shape and improve services • Patients and carers helping to map the cancer pathway – using an illustrator to bring their views and experiences to life • Taking part in a patient panel to recruit new members of staff as well as helping to draw up the competencies required for the role • Getting involved in developing information and resources

  12. So now it is over to you … • On your tables – please can you discuss in groups: • Can you give examples of when you felt listened to? • Have you been involved/engaged in any activities similar to those described this afternoon? If so when/how and how effective was this? • If you haven’t been involved previously, would you like to get involved with the Alliance in the future? • If so – How? When? What is the best way for you? • What do the Alliance need to do to engage with you? • What action would you like to see? • How would you like to receive feedback from this event?

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