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Transition for medically fragile youth/young adults

Transition for medically fragile youth/young adults. A Parents Perspective Kausha King. Youth Transition scenario. 17 year old medically complex youth with chronic health issues

cecilia-tucker
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Transition for medically fragile youth/young adults

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  1. Transition for medically fragile youth/young adults • A Parents Perspective • Kausha King

  2. Youth Transition scenario • 17 year old medically complex youth with chronic health issues • Has Medi-cal insurance • Dependent on others for care • Frequent hospital admissions • Current care includes his primary physician and 5 specialty clinicians • Attends school

  3. Ideal planning age • Because of the medical complexities of this child an ideal age would be between 14-16 years old

  4. Transition concerns • Medical care • Equipment needs • Medical supplies • Therapeutic services • School program

  5. Who should be involved in this process? • Parents • Primary physician • Specialty physicians • School district • Regional Center case manager • CCS therapist and nurse case manager

  6. Example Record Keeping systems • Electronic device with pertinent medical information • Binder system

  7. Challenges in finding adult care • Medical insurance not accepted • Diagnosis is too complex • Physician not accepting any more patients • Recommended physician is too far away

  8. Success in finding adult care • Asking your child’s Primary physicians and/or specialty clinicians for recommendations • CCS staff • Peer families • Schedule an appointment with a physician that may be qualified to provide healthcare to your child

  9. Helpful information • Start the dialogue with your child’s team • Know your health care options • Inquire about a Conservatorship before your youth turns 18 if necessary • Find out if your child qualifies for SSI

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