Medical Home Workshop For Parent Partners

1. Physicians Nurses & Practice Staff Children and Youth with Special Health Care Needs (CYSHCN) Parent Partners The Ideal Quality Medical Home Improvement Team! Medical Home WorkshopFor Parent Partners April 27-28, 2012 – Orlando Florida

2. Disclosure I have no relevant financial relationships with the manufacturers of any commercial products and/or provider of commercial services discussed in this CME activity. I do not intend to discuss an unapproved/investigative use of a commercial product/device in their presentation.

3. What is Medical Home • The medical home, AKA the patient-centered medical home (PCMH), is a team based health care delivery model led by a physician that provides comprehensive and continuous medical care to patients with the goal of obtaining maximized health outcomes. It is "an approach to providing comprehensive primary care for children, youth and adults”. The provision of medical homes may allow better access to health care, increase satisfaction with care, and improve health. Joint principals that define a PCMH have been established through a network of associations including the AAP.

4. What Medical Home is NOT • It is not medical care in a home.

5. Patient & Family Centered Care • developed by the Institute for Patient- and Family-Centered Care, patient- and family-centered care is an approach to the planning, delivery, and evaluation of health care that is grounded in mutually beneficial partnerships among health care providers, patients, and families. It redefines the relationships in health care.

6. Medical Home Services Should Be.. Accessible Accountable Comprehensive Integrated Patient –Centered Safe Scientifically Valid And satisfying to both Patients and their Physicians (and Families)

7. 2006: Patient-Centered Primary Care Collaborative Created • Started by IBM and other organizations created this group to promote the Medical Home. • As of 2009 – Members include: • 500 Large Employers • Insurers • Consumer Groups • Doctors and other health care providers

8. The Patient Centered Medical Home Should Ensure That.. • Care is coordinated and/or integrated. • Quality and safety. • Enhanced access to care. • Payment must be provided for additional services.

9. 2008- 2010 – So Much Happened • Accreditations became available. • Barack Obama supports Medical Home with a commitment for payment. • Coalitions of consumers, labor and health advocacy groups are established. • Principals for evaluating Medical Homes are created from a PATIENT PERSPECTIVE. • 20 bills in 10 states had been introduced to promote Medical Homes.

10. Quality of Patient Care Uses Wagner Chronic Care Model • This model encourages the health system to use community resources to effectively care for patients with chronic illnesses through production interactions between activated patients and a prepared practice team. • THIS TEAM MUST INCLUDE ACTIVE PARENT PARTNERS WHO REPRESENT PARENTS/FAMILIES AND CHILDREN AND YOUTH WITH SPECIAL HEALTH CARE NEEDS (CYSHCN)).

11. Parent Partners…That’s YOU! • YOU are creative in thought and ideas – Because you know what you need! Hence --- you know what others like you need too! • YOU bring unique perspectives to the table as parents, and advocates. YOU offer insight on day to day functions of family life that may alter practice activities and accessibility. • YOU create opportunity for collaborative advocacy among state and federal government, payer sources, community organization, etc. • YOU Provide valuable community resources for families. • YOU are the VOICE of the CONSUMER.

12. An Improvement Team Needs Parent Partners – Like YOU! An improvement team cannot address issues of quality without input from the very customers (parents and children) that directly benefit from the services offered by the practice. Center for Medical Home Improvement (CMHI)

13. Powerful Partnerships A Handbook for Families and Providers Working Together to Improve Care Pat Heinrich RN, MSN Quality Improvement Consultant http://www.nichq.org/resources/powerful_partnerships.html

14. Powerful Partnerships This guide includes information and guidance on how to get the most out of this potentially powerful partnership. • This guide is intended to help both family members and healthcare professionals who are working together to improve care for children with special healthcare needs. • Joining together in multi-disciplinary teams, family members and providers are increasingly working as equal partners to improve care. • Collaborating as equals may be new for family members and providers.

15. Testimonials “For the first time I felt that my voice as a parent was really going to be heard by the professionals. I appreciated that they really included me from the get-go.” ~ A Parent Partner “Having parents on the improvement team was incredibly eye-opening. I learned things from them I never would have known otherwise, and it has enabled us to create truly meaningful change.” ~ A Provider Partner

16. Improving a Flawed System – The Importance of Working Together The Stories • Sophie • Jack Contents • A Framework for Improvement • A Guide for Families • A Guide for Health Care Professional

17. Parent Partners – Creative Forces on Medical Home Improvement Teams. • A Guide for Parent and Practice “Partners” Working to Build Medical Homes for Children with Special Heath Care Needs* • Center for Medical Home Improvement (CMHI) • * An addendum to the Center for Medical Home Improvement’s Building a Medical Home: Improvement Strategies in Primary Care for Children with Special Health Care Needs

18. The Medical Home Index (MHI) • The MHI a self-assessment and classification tool designed to translate the broad indicators defining the medical home (accessible, family-centered, comprehensive, coordinated, etc.) into observable, tangible behaviors and processes of care within any office setting. It is a way of measuring and quantifying the "medical homeness" of a primary care practice.

19. Parent Partner Position Description • The Parent Partner Position Description compliments the MHI. • The position description should be discussed with your practice and an agreement on how the position should be crafted is determined by the practice team. • We will stop here and compare the position description to the Medical Home index activities.