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rds’ implementation in vietnam: experience and lessons learned. The 2 nd Global HIV/AIDS Surveillance Meeting Bangkok, Thailand March 2-5, 2009. Nguyen Anh Tuan, PhD National Institute of Hygiene and Epidemiology. Historical background. 15 surveys used RDS method were conducted in Vietnam
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rds’ implementation in vietnam: experience and lessons learned The 2nd Global HIV/AIDS Surveillance Meeting Bangkok, Thailand March 2-5, 2009 Nguyen Anh Tuan, PhD National Institute of Hygiene and Epidemiology
Historical background 15 surveys used RDS method were conducted in Vietnam • In 2004: • Two surveys in Female Sex Workers (FSW) (WV) • Three surveys in Injecting Drug Users (IDU) (CDC) • In 2005: (IBBS round I) • Four surveys in IDUs • Two surveys in MSMs • In 2006: (Pilot study in implementing new approaches in sentinel surveillance) • Two surveys in IDUs • Two survey in FSWs
Why RDS were used? • Methods of time location sampling (TLS) could not be applied in the provinces being very hard to reach target populations such as FSW, IDU, and MSM: • Did not have enough budget and staff to conduct mapping phase in order to apply TLS methodology • Had a mapping in order to do TLS, but target population did not participate in the study through the invitation of interviewers to visiting study site. • Locations that members of target population congregate were not representative for the population • Participants can talk more “true” in answering the questions of the surveys at safer study site
Why RDS were used? • To evaluate whether RDS for conducting HIV sentinel surveillance (HSS) are feasible and produce information as good as or better than current HSS methods for IDUs and FSWs: • It was very difficult to select “real” FSWs and to call the participation of IDUs in taking blood in the current sentinel surveillance • To avoid the risk in visiting the field to collect the blood samples in the “unsafe conditions” for medical workers • To use as “recapture” phase in capture-recapture methodology in estimating the size of target population
Should Conduct Formative Research • Use existing information (peer educators, public health staff, health care providers, HIV/AIDS case reporting) • In-depth interviews were useful for gathering qualitative data from members of the target population. • Focus group discussions were used to gather information on social networks and to pretest survey questions and methodological issues • Formative research can help: • Decide whether RDS is an appropriate sampling method for the population being studied • Identify subpopulations of interest and help select subsets for seeds • Identify individual seeds • Define logistical issues (proper incentive, study sites, locations, etc.) • Materials development: coupons, survey questions, forms
In Selecting seeds • Seeds should be selected through social mapping of target population networks and sub-networks • Selecting seeds that were as diverse as possible with regard to sub-networks • Relevant characteristics were included such as age, geography, drug use, social status, economic status, etc. • Seeds need to be well motivated, as their primary utility is as recruiters • Number of seed should be 3-5
Management and distribution coupons • Coupons’ managers (2 for 1 site) should be trained about method of management and of distribution coupons: • How to coding the coupons • Fill-day-out forms for coupon distribution • Receive the coupons coming back from new recruits. • Interview the recruiters about the persons who refuse to participate • How to pay for interviewer and recruiter • Coupon should be designed two parts: • One for paying incentive to recruiter • One for keeping by study • Two incentive for one participant: • Direct pay to recruiter after interview • Pay recruiter based on the numbers of recruitees that they invited sucessfully (visited the study sites and participated in the study).
Coupon Components – Front Coupon Given to Peer Stub for Reward
Coupon Components – Back Information Extra information for the Peer Extra Information for the Recruiter
Linking recruiters and recruitees • For analysis purposes, it is crucial to know who recruited who, as well as ordering in recruitment chain • This was done via use of numbered coupons and Excel spreadsheets: • There were 7 digits in the coding number if we wanted to reach 5 waves in maximum: Coding number = N0.N1.N2.N3.N4.N5 N0 = 2 digits, seed number in the survey, N1 = 1 digit, number 1-3, representative for 1st wave N2 = 1 digit, number 1-3, representative for 2nd wave N3 = 1 digit, number 1-3, representative for 3th wave ……. With the number: 02.1.2.1.1.0 from seed number 2, recruit number 1 of first wave, recruiter number 2 of second wave, …
Verifying eligibility As respondents were rewarded for being interviewed in RDS, participant have tendency to receive more incentive by being interviewed multiple times under different identities • To avoid: • Study sites should not excess 2 • Started in the first site with 2 coupons’ managers • Finished at the first site and moved to second site with the same 2 coupons’ managers.
Measuring non-response bias A questionnaire on the invited persons but refuse to participate was completed in the survey • But it was not used: • Recruiter did not tell about story of all refusal (it take more time, no more incentive) • Coupons did not come sometime directly from recruiter: recruiter gave to some one and they gave or sold to others.
Measuring network size • Having a measure of personal network size is essential in order to be able to properly weight the data • Question on network size was included in the survey questionnaire • Accuracy of reported network size ?
Advantages of RDS • Reach less visible portion of “hidden” sub-populations: call girl, indirect FSW, call girl on the internet, new IDU, … • It is easier for interviewer – target members do the recruitment for them • Good if conduct biological testing – having good place to take specimens
Limitations of RDS • Management demanded strictly and complicated • Need to keep track of links between recruiters and recruitees • Need to verify sub-population membership • Need to verify pre-existing relationship between recruiter and recruitees • Need to control non-response bias • Need to use special software to do the analysis. This software is not easy to use and limited analysis • Remaining methodological concerns requiring further discussions • Validity of key assumption that people recruit at random within their personal networks?