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Caring for Families: The ECPB Way

Caring for Families: The ECPB Way. Consensus from Working Party G’dansk October 2008 Collated by Hugh Martin, Australia. T he “Second Patient”. Parents Together Separated Grandparents Distant relatives – extended family Important others. T he “Second Patient”. Parents Together

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Caring for Families: The ECPB Way

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  1. Caring for Families:The ECPB Way Consensus from Working Party G’dansk October 2008 Collated by Hugh Martin, Australia

  2. The “Second Patient” • Parents • Together • Separated • Grandparents • Distant relatives – extended family • Important others

  3. The “Second Patient” • Parents • Together • Separated • Grandparents • Distant relatives – extended family • Important others All are involved in the patient’s recovery

  4. Strategic Principles • Quality of Care • Communication • Individualised Care • Empathise • Emphasize the positive.

  5. Strategic Principles • Quality of Care The origin or status of the family should not alter the quality of care.

  6. Strategic Principles • Quality of Care • Communication Whole team Make time Surgical leader must validate

  7. Strategic Principles • Quality of Care • Communication • Individualised Care Care tailored to needs Planned at team meetings

  8. Strategic Principles • Quality of Care • Communication • Individualised Care • Empathise With family and patient

  9. Strategic Principles • Quality of Care • Communication • Individualised Care • Empathise • Emphasise the positive. Without distorting the truth

  10. Care of Family: Factors • Factors common to patient & family • Factors confined to family • Factors confined to patient

  11. Factors Common to Patient & FamilyEstablished Factors • Cultural • Language • Pre-morbid coping skills • Pre-morbid psycho-social pathology

  12. Factors Common to Patient & FamilyResponse to Incident • Guilt • Blame • Denial

  13. Factors Common to Patient & FamilyHospital & Treatment Related • Unfamiliar environment • Fear of loss of function • Fear of unknown • Isolation • Loss of autonomy • Unrealistic expectations • Highly visible nature of burns

  14. Factors Common to Patient & Family In the acute phase; most decisions are taken by the team. In the later stages: there is more opportunity for the patient and the family to participate.

  15. Factors Influencing Family • Education – ability to understand • Financial status – effects of loss of earnings • Family structure – where decision making lies • Society norms – how is the family expected to respond? • Exhaustion • Prolonged treatment – acute phase & rehabilitation • Commitment to care after discharge

  16. Factors Confined to the Patient • Age • Developmental stage • Pain

  17. Summary • Importance of the whole family being involved in care is re-affirmed: a 2 way interaction. • Every member of the team is involved • Good leadership is essential • Multiple factors affect the way the team interacts with the family. • If things go wrong, re-examine the factors to ensure all have been considered.

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