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Objectives/Overview

Nebraska Early Hearing Detection and Intervention CONNECTING FAMILIES with SERVICES IN April 14,2014. Objectives/Overview. 1 Describe information available to parents with a child newly identified as deaf or hard of hearing 2 Connect families with resources using A Parent Resource manual

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Objectives/Overview

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  1. Nebraska Early Hearing Detection and InterventionCONNECTING FAMILIES with SERVICES INApril 14,2014 Stacie Ray, Kathy Northrop, Jim Beavers, MeLissa Butler

  2. Objectives/Overview 1 Describe information available to parents with a child newly identified as deaf or hard of hearing 2 Connect families with resources using A Parent Resource manual 3 building Your own Parent Resource Guide

  3. Where in the USA is Nebraska?

  4. Nebraska 2012 pop 1,855,525 450 miles

  5. Information & resources following Identification • “I will say it’s overwhelming in the beginning…you want the information, however, at the same time you’re trying to take in so much information that it is a lot to take in.” From Fitzpatrick et al 2008 AJA 17:38-49, page 44.

  6. 2013 Supplement JCIH (2007) • Focus: to establish strong early intervention systems • Best Practice Guidelines: 11 Goals & Benchmarks • Part of Goal & Benchmark #1 • “Develop a mechanism that ensure families access to all available resources and information that is accurate, well balanced, comprehensive, and conveyed in an unbiased manner.” • Annually update the resource manual • Evaluate quality and comprehensiveness and reach

  7. 7 Recommended components • Description of all EI programs and providers • Web sites related to deafness and hearing loss • National organizations/resources for families • Terms & definitions related to deafness/hearing loss • Infrastructure of state resources for families • Service available through part C • Communication choices, definitions & factors to consider

  8. Resource Guide 5 Sections • Next Steps • Language and Communication • Guidance and Support • Additional Resources • Helpful Forms

  9. Section 1Next steps • Early Development Network information & directory • Nebraska Hands & Voices brochure • Information about communication options • Learning About Hearing – A family Checklist • CDC brochures :Questions for: Medical Professional, ENT, Audiologists, Genetics team • Familiar Sounds Audiogram & Speech Banana • Funding Toolkit

  10. Section 2Language & Communication • Opening Doors: Technology & Communication Options for Children with Hearing Loss (U.S. Department of Education) • Beginnings: Communication Approaches (BEGINNINGS) • Decision Guide to Communication Choices (CDC)

  11. Section 3Guidance and Support • It’s Never Too Early (Early Development Network) • Nebraska Family Support Guide • IFSP Web (answers4families) • Nebraska Resource and Referral System (answers4families) • Nebraska Regional Programs for Students Who Are Deaf or Hard of Hearing locations & calendar

  12. Section 4Additional Resources • “Medically Handicapped Children’s Program” (Nebraska Dept. of Heath and Human Services) • ChildFind • Parent Training Institute (PTI) of Nebraska • Nebraska Commission for the Deaf and Hard of Hearing • HearU Nebraska • EHDI PALS • Nebraska Family Support Guide • Hands & Voices and Guide by Your Side

  13. Section 5Helpful forms • Contact Log • Doctor’s Appointment sheet • Building Your Care Notebook – list of downloadable forms

  14. Contact information • Dr. Stacie Ray, Advisory Committee Member, Assistant Professor of Practice, AuD, CCC-A • sray2@unl.edu; 402-472-3814 • Kathy Northrop, Program Manager • Kathy.northrop@nebraska.gov; 402-471-6770 • Jim Beavers, Business Analyst • Jim.beavers@nebraska.gov; 402-471-1526 • MeLissa Butler, Community Health Educator • Melissa.butler@nebraska.gov; 402-471-3579

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