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Involving service users in research

Involving service users in research. Julie Coleman. Who am I?. Senior Lecturer in Occupational Therapy at Sheffield Hallam University. State registered Occupational Therapist.

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Involving service users in research

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  1. Involving service users in research Julie Coleman

  2. Who am I? • Senior Lecturer in Occupational Therapy at Sheffield Hallam University. • State registered Occupational Therapist. • Researcher – worked with Dr Sarah Cook on her pilot RCT for Occupational Therapy with people with psychotic conditions. • Service user/survivor with 20 years experience accessing primary and secondary mental health services.

  3. How to involve us • To avoid tokenism: • Involve us from the very beginning and give us a clearly defined role. • Pay us • Meet us half way – don't expect us to travel all the way to you. • Remember we can only speak for ourselves from our own experience – I am not "representative" • Listen to our stories

  4. My story • Digital Storytelling • www.pilgrimprojects.co.uk • www.patientvoices.org.uk • click here to open the digital story shown on the day. (needs windows media player).

  5. Useful resource • The ethics of survivor research: Guidelines for the ethical conduct of research carried out by mental health service users and survivors Alison Faulkner 2004 • downloadable from the Joseph Rowntree Foundation at http://www.jrf.org.uk/bookshop/eBooks/1861346662.pdf or http://www.jrf.org.uk/bookshop/details.asp?pubID=639

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