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EPR2020 for Clinical Research: Data Discovery, Management, and Analysis

Utilize the EPR2020 platform to migrate, discover, manage, and analyze clinical data for research purposes. Access patient records, diagnoses, lab results, and more, while improving research efficiency and data quality.

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EPR2020 for Clinical Research: Data Discovery, Management, and Analysis

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  1. Using EPR2020 for Clinical Research Diana Gumas, Director of Clinical and Clinical Research IT

  2. Migration of clinical data to EPR2020 (powered by Amalga) EPR2020 Read-Only Data Discovery for Clinical Care Research Quality Improvement Patient Portal Clinical Research Management System Inpatient & Outpatient HDM/Casemix Diagnoses/Procedures JHCP Other JHH/JHBMCClinical Systems External Labs Additional Hospitals EPR- JHH & JHBMC Discharge summaries Operative notes Clinic Notes Problems, Allergies, Meds Lab Results Radiology Results

  3. Multiple Applications – Including Research Support

  4. Research App View:Patients on “My Studies”

  5. Now drill down to see Clinical Data for the Research Participant Clinical detail for the Patient: Problems, Allergies, Immunizations, Medications Labs Documents Active Research Study enrollment

  6. Research App View:Research Lab Results

  7. Exporting Lab Results Saves SignificantResearcher Hours!

  8. Researcher App View: Diagnosis“Find my patients who had a cardiac diagnosisin the 1st quarter of 2010” Provides assistance gathering: • Preliminary, anonymous data for feasibility, grant applications and statistical sample-size estimates • IRB-approved case-finding--for study enrollment (mailings, phone solicitation), chart review, and cohort/case-control studies • Research data extracts - monthly/quarterly integrated extracts from EPR, POE, ORMIS, lab/PDS, billing systems, vaccination/transfusion/culture data, etc.

  9. Electronic Patient Record (EPR) and Research • One major source • of clinical data for JHH/JHBMC • Research documentation • New EPR clinical research note just for researchers • Access to scanned consents • & Can look at statistics for race, gender, age, diagnosis description

  10. DiagSeq 1 - the primary for this encounter.Notice patient has a pacemaker… so…

  11. Search patient’s documents for pacemaker

  12. Future Plans • My Research Patients’ Outpatient Diagnosis • My Research Patients’ Procedures • Alerts for significant events • Participant admission • Lab value out of range • Evaluate Microsoft cohort discovery tool • Evaluate use of i2b2 with data from EPR2020 • Provide result data to Case Report Forms in Research System • Interface to Specimen Tracking Tool (caTissue) • Natural Language Processing to mine documents

  13. EPR2020 Data Contents Available today from EPR for JHH & JHBMC - *view-only* 4.4M Patients, 32.6M Visits 16.2M Documents, 8.5M Radiology Reports 78M Lab Tests, 402M Lab Results 1.7M Problems, 2.5M Medications, 159K Allergies, 475K Immunizations 5.8M Inpatient Diagnoses (409K distinct) In progress: Community physician visits and summary documents Outpatient diagnosis codes & procedures Images Improve speed of display Additional clinical research tools

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