1 / 9

Family Quality of Life and Application Among People with Intellectual Disabilities and Their Families

Rationale for Family Quality of Life Focus. International focus on QOL for persons with intellectual disabilities (ID)Increased responsibility expected of family members in supporting and caring for their relations with ID; in Taiwan, approximately 90% live with families)Need for family supportMo

clinton
Download Presentation

Family Quality of Life and Application Among People with Intellectual Disabilities and Their Families

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

    1. Family Quality of Life and Application Among People with Intellectual Disabilities and Their Families Professor Robert L. Schalock, Ph.D. Institute of Health & Welfare Policy Yang Ming University October 17, 2008

    2. Rationale for Family Quality of Life Focus International focus on QOL for persons with intellectual disabilities (ID) Increased responsibility expected of family members in supporting and caring for their relations with ID; in Taiwan, approximately 90% live with families) Need for family support More holistic approach to understanding the impact of disability on the family and family members Historically, stress burden of care, effect on family functioning, and/or eco-cultural deprivation/changed routine Applying a QOL framework to families brings together a wider range of aspects of family life to understand family experiences and needed supports

    3. Steps in the Development of a QOL Conceptual and Measurement Framework Observing and describing the phenomenon (focus groups) Performing concept mapping (indicators to domains) Validating the concept and measurement framework (factor analysis) Cross-cultural studies to determine etic (universal) and etic (culture-bound) properties Structural equation modeling to determine higher order construct

    4. Individual-Referenced Quality of Life Conceptual and Measurement Framework

    5. Family Quality of Life Definition “Family quality of life is a dynamic sense of well-being of the family, collectively and subjectively defined and informed by its members, in which individual and family-level needs interact.” (Zuna et al., in press)

    6. Family Quality of Life Domains Aznar and Castanon (2005) Emotional Well-Being Family Life Personal Strength & Development Cohabitation Rules Interpersonal & Community Relations Physical/Material Well-Being Beach Center (Summers et al., 2005) Family Interaction Physical & Material Well-Being Parenting Emotional Well-Being Disability-Related Supports International Family QOL Project (Isaacs et al., 2007) Health & the Family Financial Well-Being Family Relationships Supports from Others Supports from Disability-Related Services Influence of Values Careers & Preparing for Careers Leisure & Recreation Community Interaction

    7. Family QOL Domains and Exemplary Indicators

    8. Implications for Practice Policy Level Identify impacts of current policies or policy changes on family QOL Comparison before and after policy changes are implemented Use domains and indicators to craft new policies designed specifically to address respective domain Agency and Community Level Basis for decision making (e.g. targeted supports; additional supports) Basis for staff training Basis for meeting accountability/reporting requirements Individual Level Identify priority areas Assist in communication Self evaluation (e.g. assess own opportunities, initiatives, attainment, and satisfaction with their overall family quality of life)

    9. References Aznar, A. S. & Castanon, D. G. (2005). Quality of life from the point of view of Latin American families: A participative research study. Journal of Intellectual Disability Research, 49 (10), 784-788. Chou, Y.C. & Schalock, R. L. (2007). Trends in residential policies and services for people with intellectual disabilities in Taiwan. Journal of Intellectual Disability Research, 51 (2), 135-141. Chou, Y.C., Schalock, R. L., Tzou, P. Y., Lin, L.C., Chang, A. L., Lee, W.P., & Chang, S. C. (2007). Quality of life of adults with intellectual disabilities who live with families in Taiwan. Journal of Intellectual Disability, 51 (11), 875-883. Isaacs, B. J., Brown, I., Brown, R., Baum, N. et al. (2007). The International Family Quality of Life Project: Goals and description of a survey tool. Journal of Policy and Practice in Intellectual Disabilities, 4 (3), 177-185. Schalock, R. L., Gardner, J.F., & Bradley, V. J. (2007). Quality of life for people with intellectual and other developmental disabilities: Applications across individuals, organizations, communities, and systems. Washington, DC: American Association on Intellectual and Developmental Disabilities. Summers, J.A., Poston, D.J., Turnbull, A. P. et al. (2005). Conceptualizing and measuring family quality of life. Journal of Intellectual Disability Research, 49 (10), 777-783). Zuna, N., Summers, J. A., Turnbull, A. P., Hu, X. et al. (in press). Theorizing about family quality of life. In R. Kober (Ed.), Quality of life for people with Intellectual disability. New York: Springer.

More Related