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Dying For Care Leader Insights About Transforming Care for the Seriously-Ill and Dying in Canada Facilitated Session

Dying For Care Leader Insights About Transforming Care for the Seriously-Ill and Dying in Canada Facilitated Session. Session Agenda. Introduction View Dying For Care – Towards Quality End-of-life Care (16 minutes) Discussion of key messages Review of CHPCA Model to Guide HPC

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Dying For Care Leader Insights About Transforming Care for the Seriously-Ill and Dying in Canada Facilitated Session

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  1. Dying For CareLeader Insights About Transforming Care for the Seriously-Ill and Dying in Canada Facilitated Session

  2. Session Agenda • Introduction • View Dying For Care – Towards Quality End-of-life Care (16 minutes) • Discussion of key messages • Review of CHPCA Model to Guide HPC • Debrief about common myths, barriers and issues impeding quality care

  3. View Dying For Care • Dying For Care is a 16 minute video intended to help focus/inform dialogue locally. • It is a compilation of insights based on semi-structured interviews with Hospice Palliative Care leaders conducted in late 2005. • It reflects perspectives from a cross-section of professions and leaders from coast-to-coast. • It provides rare insights into some of the things that might impede our abilities to work effectively with health care professionals in Hospice Palliative Care work. • We will debrief at the conclusion of the video.

  4. Video Debriefing • What “surprised” you as you watched? • What “concerned” you as you watched? • What are important messages that emerge? • What will help you when working with patients, families and other care providers? • Other things that you would like to discuss/ comment about?

  5. Start with the end in mind… • What are we trying to achieve? • Canadians should be able to live well and die as free of pain and suffering as possible in the setting of their choice, surrounded by loved ones. Adapted from Quality End of Life Care Coalition of Canada (QELCCC)

  6. Rethinking Palliation • Need to broaden our understanding of palliation. • Hospice Palliative Care (HPC) as introduced in 2002 Model provides a pathway for improving care which addresses Chronic Progressive Illness. • HPC as a philosophy/model of care is broader than the earlier palliative care services provision model. • Each dying process/death event impacts at least 8 others directly – considerable hidden health risks/costs. • Emerging opportunities to provide different supports at the community-level (e.g., practical/ advanced care planning; transportation; bereavement support).

  7. Hospice Palliative Care (HPC) • A philosophy of care and range of active, supportive services provided across several settings of care (home, hospital, hospice, LTC/CC and settings of marginalization) to enhance the quality of living, dying and surviving. • Appropriate for any patient and/or family living with, or at risk of developing, a life-threatening illness due to any diagnosis, with any prognosis, regardless of age, and at any time they have unmet expectations and/or needs, and are prepared to accept care.

  8. Hospice Palliative Care (HPC)

  9. A Growing Need • Around 250,000 Canadians will die this year as many as 165,000 could use hospice palliative care services. • Not just about cancer, but other major causes of expected death including: • End-stage organ failure (e.g., heart, lung, renal) • Neurological illness (e.g., Alzheimer’s, ALS, MS) • Immunological illness (e.g., HIV/AIDS) • Many people are living much longer with illnesses which will lead to an expected death, often with pain/suffering. • At present less than 15% of Canadians have access to hospice palliative care services in Canada. Rural and remote Canada is generally doing much worse than most cities.

  10. The Current Reality • Canadians are living longer, Baby Boomers are aging – if we aren’t meeting the needs today what will we do in 20 years? • 33% more deaths by 2020 • Most Canadians say they would like to die at home or stay at home as long as possible yet 75% die in acute care beds or long term care facilities (2000) • Increased use of acute beds, unnecessary pain and suffering, and misuse/overuse of health delivery system when families are not supported with quality services.

  11. Specific Things We Can Do • Recognize that living well until death is not “black and white” – it is often many shades of grey involving complex care and needs provided by many. • Recognize that many health care professionals might find these issues difficult (e.g., new foreign trained doctors). • Learn to “reframe hope” for the long-view. • See the team as extending across settings of care (i.e., hospital, home, hospice [where available] and LTC/CC) and ask what is my role in “continuity of care?

  12. A Starting Point for Resources Canadian Hospice Palliative Care Association (CHPCA) www.chpca.net (see CHPCA Marketplace link) Canadian Virtual Hospice www.virtualhospice.ca End-of-Life/Palliative Education Resource Centre (US site) www.eperc.mcw.edu Living Lessons (Increasing awareness of HPC in Canada) www.living-lessons.org Palliative.info (managed by Dr. Mike Harlos, Manitoba) www.palliative.info

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