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Children with Special Health Care Needs in Illinois

Children with Special Health Care Needs in Illinois. University of Illinois Medical Center Division of Specialized Care for Children (DSCC). Established in 1937.

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Children with Special Health Care Needs in Illinois

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  1. Children with Special Health Care Needs in Illinois University of Illinois Medical Center Division of Specialized Care for Children (DSCC)

  2. Established in 1937 The Division of Specialized Care for Children is the Illinois Title V agency for specialized treatment and rehabilitation of children with chronic physical disabilities and health impairments.

  3. Division of Specialized Care for Children

  4. Stronger voice for CSHCN and their families Greater credibility with providers and consumers Ability to be more responsive to the needs of CSHCN Learning opportunities through DSCC for students in the School of Public Health and Medical School DSCC’s statewide program is an essential element of UIC’s community service initiatives University of Illinois Medical Center

  5. DSCC’s Mission Statement DSCC’s mission focuses on public service, education, and research as a basis to provide, promote and coordinate family-centered, community-based, culturally competent care for eligible children with special health care needs (CSHCN) in Illinois.

  6. DSCC has provided care coordination services to over 1 million Illinois families of children with special health care needs in all 102 counties A Tradition of Excellence

  7. 13 DSCC Regional Offices North Cook County Chicago North & South DuPage South Cook Rockford Rock Island Peoria St. Clair Champaign Springfield Olney Marion DSCC also has 40 satellite locations

  8. DSCC Clinics Kane County Clinic North Cook County Chicago North & South DuPage South Cook Rockford Rock Island Peoria St. Clair Kankakee Clinic Champaign Clinic Champaign Springfield Olney Marion Mattoon Clinic Salem Clinic Carbondale Clinic

  9. DSCC Programs • Core • SSI Disabled Children’s Program • Children’s Habilitation Clinic • Home and Community Based Waiver

  10. DSCC Core Program

  11. DSCC Core Program Eligibility Defined by Administrative Rules • General Eligibility • Age • Residency • Citizenship • Medical Eligibility • Specific impairment categories • Financial Eligibility • 285% FPL 89 Illinois Administrative Code CH X, SEC. 1200.

  12. DSCC Core Program • Any Illinois child from birth to age 21 • Medical condition which can be improved through medical treatment • Eligible diagnosed condition (care coordination) • Suspected eligible condition (no-cost diagnostic services) • Financial assistance for those families who meet financial eligibility criteria. DSCC Serves Approximately 23,000 children and families annually

  13. Medically Eligible Conditions A child must have a treatable chronic condition in one of the following categories: • Orthopedic (bone, muscle, joints) • Heart defects • Neurological condition (nerve, brain, spinal cord) • Hearing loss • Cystic Fibrosis • Disfiguring defects – external body

  14. Medically Eligible Conditions • Speech conditions requiring medical/dental treatment • Certain inborn errors of metabolism • Eye impairments including cataract, glaucoma, strabismus, and certain retinal conditions (excludes refractive errors) • Urinary impairments (kidney, ureter, bladder) • Hemophilia

  15. Care Coordination Services • Development of an Individualized Service Plan (ISP) • Assists family in accessing needed services • Provides benefits management • Collaborates with a managing physician • Provides transition planning from adolescence to adulthood All Eligible Families Receive Care Coordination Services at No Cost

  16. Physicians Board certified Primary Care Pediatric specialists Therapists (OT, PT, Speech etc.) DME Supplies/Equipment Hospitals Specialty Centers Cleft Lip/Cleft Palate Craniofacial Cochlear Implant Cardiac Centers Ambulatory Surgical Centers Epilepsy Surgical Centers DSCC Approved Providers DSCC has more than 10,000 enrolled providers

  17. DSCC SSI-Disabled Children’s Program

  18. Congress Established SSI-DCP In 1978, Governor James Thompson designated DSCC as the state agency to administer the SSI-Disabled Children’s Program Approximately 200 - 250 newly eligible children for SSI receive information and referral services each month.

  19. DSCC Assistance for families in the SSI-DCP • Referral information to community and state resources • Referrals to Early Intervention Program …birth to 3 years • Referrals to Pre-school Educational Programs ages 3 to 5 years • Transition follow-up for youth ages 14-15 years

  20. Children’s Habilitation Clinic

  21. Children’s Habilitation Clinic • Multidisciplinary CSHCN clinic with 950 visits annually • Training opportunity for UIC medical staff, nurses, therapists, and social workers

  22. Home and Community Based Waiver Program

  23. Home and Community Based Waiver Program • Predominantly care coordination service • More than 500 children in the program • Considered a model program by other states • Cost neutral program for DSCC • Operated by DSCC; Administered by HFS In 1980, the first ventilator dependent child was discharged in collaboration between DHFS and DSCC.

  24. Environmental modifications Training of nurses, vent dependent children only. Placement maintenance Respite Care - up to 336 hours a year Skilled shift nursing care Special medical equipment and supplies Home and Community Based Waiver Services

  25. DSCC Advisory Groups

  26. Family Advisory Council • Chairperson • DSCC Family Liaison Specialist • Represented by 13 family members • Activities: • Family Newsletter (Special Addition) • Family Handbook • Block Grant Review • Technical assistance with agency procedures/documents

  27. Medical Advisory Board • 15 members • Minimum of 12 physicians • Up to 3 other professionals • Ex-Officio parent representative from Family Advisory Council The Medical Advisory Board usually meets three times a year

  28. University of IllinoisMedical Center’sDivision of Specialized Care for Children Future Opportunities

  29. What Families Say About DSCC • “Excellent medical care received”… from well qualified DSCC-approved medical specialists” • “Caring, dedicated, committed DSCC care coordinators” … just doing their job” • “….no comparison to other agencies” DSCC Family Survey

  30. For More Information Visit our website . . .

  31. Website Address - http://www.uic.edu/hsc/dscc/

  32. A Tradition of Excellence . . . partnering with Illinois families to build better lives for children with special health care needs “My child is my life.” AParent 2005 DSCC Survey Division of Specialized Care for Children(DSCC) 3135 Old Jacksonville Road Springfield, IL 62704-6488 1-800-322-3722

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