Parallel Session on Health Promotion for Children and Adolescents in Hospitals Dublin, 20/5/2005

1. HEALTH PROMOTING HOSPITALS FOR CHILDREN AND ADOLESCENTS (HPH-CA) ABOUT THE HPH-CA PROJECT - Mission - Task force and related Working group - Logical framework HPH-CA BACKGROUND SURVEY Parallel Session on Health Promotion for Children and Adolescents in Hospitals Dublin, 20/5/2005

2. HPH-CA Mission “to develop a project aiming to apply HPH principles and criteria to the specific issues of health promotion for children and adolescents in hospitals, providing an organic conceptual and operational framework as an authoritative scientific support”. Source: Task force’s Website: www.meyer.it/hph/hph-ca

3. HPH-CA Task force and Working group WHO European Office of Barcelona European Association for Children in Hospital: EACH University Research Units: - RESO Louvain, - ‘L. Boltzmann’ Institute MEYER Task force Hospitals for Children: Amsterdam, Athens, Barcelona, Dublin, Edinburgh, Kaunas, Kazan, Madrid, Nice, Odense,Tallinn, Vienna

4. HPH-CA Task force:Fabrizio Simonelli, Maria José Caldes Pinilla, Katalin Majer HPH-CA Working Group Austria: UNIVERSITÄTSKLINIK FÜR KINDER UND JUGENDHEILKUNDE - VIENNA I. Eichler Austria: ‘L.BOLTZMANN’ INSTITUTE - VIENNA P. Novak Belgium: UNITE’ D’EDUCATION POUR LA SANTE’ RESO UNIVERSITE’ CATHOLIQUE DE LOUVAIN I. Aujoulat Denmark: ODENSE UNIVERSITY HOSPITAL H.Tønnesen Estonia: TALLINN CHILDREN’S HOSPITAL L. Suurorg-T. Harm France: NICE UNIVERSITY HOSPITAL L. Bentz Greece: KYRIAKOY CHILDREN’S HOSPITAL ATHENS S.Tsitoura Ireland: HPH NETWORK - DUBLIN C.Hannebry-A.O’Riordan Lithuania: KAUNAS COUNTY HOSPITAL J. Kudzyte Netherlands: EMMA CHILDREN’S HOSPITAL UNIVERSITY OF AMSTERDAM J.W. Hartog Dammer Russian CHILDREN’S HOSPITAL OF Federation: KAZAN REPUBLIC OF TATARSTAN E.V. Karpukhin Spain: HOSPITAL DE SANT JOAN DE DIEU ESPLUGUES DE LLOBREGAT M. del Castillo Rey Spain: HOSPITAL UNIVERSITARIO NIŇO JESUS MADRID J. A. Dìaz Huertas UK: ROYAL HOSPITAL FOR SICK CHILDREN LOTHIAN UNIVERSITY HOSPITALS NHS J. Robinson EACH: EUROPEAN ASSOCIATION FOR CHILDREN IN HOSPITALS G.Filippazzi

5. HPH-CA WEBSITE For more information: HPH-CA Website www.meyer/hph/hph-ca

6. Logical framework COMMUNITY OF PRACTICE RIGHTS RIGHTS STANDARDS EVIDENCE CRITERIA, STANDARDS, INDICATORS HPH-CA BACKGROUND RECOMMENDATIONS AND GUIDELINES GOOD PRACTICES OPEN NETWORK NEEDS WEBSITE, CONFERENCES, WORKSHOPS TASK FORCE, WORKING GROUP

7. HEALTH PROMOTION FOR CHILDREN AND ADOLESCENTS IN HOSPITALS BACKGROUND SURVEY PRESENTATION, RESULTS FINAL COMMENTS AND RECOMMENDATIONS

8. PRESENTATION OF THE HPH-CA BACKGROUND SURVEY

9. BACKGROUND SURVEY OBJECTIVES: to carry out a preliminary inquiry in the WHO European Region, in order to acquire information (which will integrate the theoretical work of the HPH-CA Working Group) in the following four areas: • Children’s rights in hospitals • Adopted standards on health promotion in hospitals • Current practices of health promotion in hospitals • General situation (relating to health promotion issues in hospitals) • Legal situation, Education, Admission

10. BACKGROUND SURVEY METHODOLOGY - THE QUESTIONNAIRE: - the questionnaire has been elaborated by the Task force and by some members of the Working group, defining the four areas above mentioned; - an explanatory note on the study, and a glossary of the main terms utilised with the correspondent meanings, introduced the questionnaire; - questions were both open and closed format. METHODOLOGY - THE SAMPLE: 114 questionnaires from hospitals belonging to 22 European countries, of whom 31,58 % are members of the International HPH Network. (This sample is not extensive nether statistically representative).

11. METHODOLOGY - DATA COLLECTION: HPH Co-ordinators, WG Members, EACH delegates Recognition of the addressees: within June, 30 Health Promotion for Children and Adolescents in Hospitals Background survey questionnaire Distribution of the questionnaires and their compilation: within August, 31 Elaboration of the information and reporting: within December, 31 Collection of the questionnaires and control of theinformation: within September, 30 The hospitals participated on a voluntary basis. As the study was exploratory, the procedure for data collection was not designed to obtain a representative sample.

12. BACKGROUND SURVEY • METHODOLOGY - DATA ANALYSIS: • - quantitative point of view - general criteria: • reporting with descriptive method, without interpretation, • reporting according to the general criteria and principles of the HPH philosophy, • reporting according to the conceptual framework defined by the HPH-CA Working Group. • (Specific criteria for single areas of the report have been followed.) • - qualitative point of view: • identification of the clusters (target groups, typology of standards and practices), • within these clusters data have been sorted and elaborated. • (Furthermore, a list with the examples of recognised health promotion practices has been inserted.)

13. RESULTS

14. RESULTS: HOSPITALS PARTICIPATING 114 QUESTIONAIRES COLLECTED FROM 22 EUROPEAN COUNTRIES

15. RESULTS: CHILDREN’S RIGHTS • Summary • 50 hospitals (44% of the sample) declare having officially adopted a charter on the rights of children in hospitals, • 12 hospitals (11% of the sample) declare ‘work in progress’.

16. RESULTS: ADOPTED STANDARDS - GENERAL DATA • Summary • 35 hospitals (30,70% of the sample) declare to have a written policy for health promotion, • 17 hospitals (14,90% of the sample) declare ‘work in progress’

17. RESULTS: ADOPTED STANDARDS - LIST FOR TYPOLOGY Among the 33 hospitals which have declared some standards on health promotion, the distribution was the following:

18. RESULTS: CURRENT PRACTICES FOR HPH-CA TARGET GROUPS

19. FINAL COMMENTS

20. FINAL COMMENTS: • Charters on the rights of children in hospital: • lack in the adoption of Charters (and lack of tools to assess the respect of the rights); • Health promotion standards: • many different ways to intend the mean of standard for health promotion; • Current practices of health promotion: • rich cultural and operative heritage exists; • practices are addressed mainly to children and adolescents with severe/chronic diseases. • General information: • wide attention given to the right of the child to stay with his/her parents and relatives during hospitalisation, and to the adoption of rules and economical facilities; • relevant differences exist in order to the application of the limits of children’s as regards the ordinary access to paediatrics hospitals or departments. • Comparison between hospitals which are HPH members and hospitals which are not members: • HPH members address generally more attention to the rights of children in hospitals and to the adoption of standards on health promotion; and they have described a relative higher number of current practices.

21. RECOMMENDATIONS

22. RECOMMENDATIONS: • This work highlights the needs to promote the scientific research, culture and interventions based on the health promotion inside the hospital structures. • On the basis of the results, this process calls for: • increase of the adoption of charters on rights of children in hospitals by children’s hospitals and paediatric departments of general hospitals, and also of the development of related tools for assess their observance; • elaboration and sharing by the health professionals and managers regarding the evidence of key concepts, means and reference models related to health promotion for children and adolescents in hospitals; • description and dissemination of good practices and development of standards on health promotion for children and adolescents in hospitals; • development of actions addressed to reduce the differences with regard to accessibility/availability to health promotion activities in hospitals in the WHO European Region.