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Breathe On: Empala Empathetic Patient Advice & Liaison Assistance

Breathe On aims to resolve ethical disputes between parents and medical teams, preventing lengthy delays and court proceedings. Empala provides non-medical arbitration services to reach consensus, with no cost to NHS England. Pilot program in Southampton PICU for 9-12 months.

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Breathe On: Empala Empathetic Patient Advice & Liaison Assistance

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  1. Breathe On: EmpalaEmpathetic Patient Advice & Liaison Assistance Victoria Townsend Breathe On UK Registered Charity 1143785 web www.breatheon.org.uk

  2. Background

  3. Ethical Disputes • Parents and medical teams often end up with lengthy disputes  • Each party getting more engrained in their viewpoint 

  4. Why this is a problem?  • Enormous resources used with delays  • Often cases stay on ventilation for months whilst disputes continue without resolution  • End up in court  • Pain & suffering for families, children 

  5. Resource issues  • Wastage of limited NHS funding on futile treatment  • Less funding available for those who would benefit 

  6. Breathe On Current Role

  7. What is being Proposed • EMPALA =Empathetic Patient Advice & Liaison Assistance • non medical arbitration service between medics and families to enable consensus to be reached and prevent court proceedings • no cost to NHS England to enable full independent status

  8. How will it be piloted? • RCPCH pilot Empala Breathe On UK service Southampton PICU 9 -12 months audit • Nuffield Bioethics Foundation guidelines 

  9. How will it roll out? Vision to provide national coverage once regional pilot is approved

  10. Contributors Breathe On: Victoria Townsend Tessa Lane Lizzie Tough Dr Martin SamuelsDr Jane Turner Goodworks

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