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Autism and TeleHealth Technologies Facilitating Treatment and Research

Autism and TeleHealth Technologies Facilitating Treatment and Research. Georgia Tech University January 18, 2005. Ron Oberleitner Advisor – Princeton Autism Tech. TalkAutism General Manager Father of 12-year-old Robby. Cons Spectrum of Communication deficits Spectrum of Social deficits

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Autism and TeleHealth Technologies Facilitating Treatment and Research

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  1. Autism and TeleHealth TechnologiesFacilitating Treatment and Research Georgia Tech University January 18, 2005

  2. Ron Oberleitner • Advisor – Princeton Autism Tech. • TalkAutism General Manager • Father of 12-year-old Robby

  3. Cons Spectrum of Communication deficits Spectrum of Social deficits Spectrum of Behavioral Issues Other ADHD Sensory Issues Sleep problems Compulsions No sense of danger Run away Food allergies AND MORE!! Challenges for families and professionals Trauma!!! Or Distress Pros Hidden GIFTS! Autism Unique Characteristics • Stressed travel searching for answers • Futile office visits • Depleted financial resources • Over-extended social services

  4. Autism Community Dynamics • Fastest-growing developmental disability • 10x more than 1987, 2x since 1998 • 75% diagnosed are 3 -13 yrs. old • 1 in 166 births (CDC) • 1 to 1.5 million Americans (CDC, 2000 Census) • In 10 years, annual cost = $200-400 billion! (ASA) • Society costs reduced by 2/3 with early diagnosis and intervention (London School of Economics)

  5. Need for TeleHealth Technology • Diagnosis • Healthcare • Education • Family / Professional Support

  6. A Distance Learning Platform which disseminates expert presentations in a variety of formats. • Autism’s Largest Interactive Resource Directory • -- 3,953 expert profiles currently • A Resource Message Board for advocates to respond • www.talkautism.org • TalkAutism Related Statistics: • Est. 1,000+ visitors / 17,000 hits EACH DAY to TalkAutism services directly or via sponsors’ websites • Production, outreach and hosting of more than 50 videos, specialty chats & videoconference presentations

  7. www.talkautism.org OR embedded services in organization’s website

  8. Sharing Distance Learning Distance learning

  9. Thanks to TalkAutism Host Sponsors New Horizons in Autism, Inc. (Advocate Support)

  10. Distance Learning Platform • -- 50 + media presentations • Largest Interactive Resource Directory • -- 3,953 expert profiles currently • Resource Message Board • www.talkautism.org • TELEHEALTH SERVICES • Project Management, Outreach and Client Support • Real-time, Store and Forward Solutions • Large potential TalkAutism study population • HIPAA compliant server capability for subject data record keeping

  11. Autism and Telehealth Doctor’ Office Patient’s Home Real-time & ‘Store and Forward’ Electronic Health Record (EHR) Distance Learning for health professionals / families

  12. Autism TeleHealth Real-time / Store & Forward 95% of ‘data’ captured with a $250 digital camera (incl. video)

  13. Autism TeleHealth Diagnosing at home ??? Store & Forward Video captured on a $250 digital camera – no editing required

  14. Autism TeleHealth Education - Documenting progress efficiently - Facilitating IEP observation E.g. No Child Left Behind

  15. Autism TeleHealth Health Episodes Store & Forward Most PIX / Video captured on a $250 digital camera

  16. Autism TeleHealth Behavioral Examples Store & Forward Most PIX / Video captured on a $250 digital camera

  17. Goal - Autism TeleHealth Prove REMOTE ‘data’ as helpful for: Diagnosis Treatment Research (Education and Health) Contingent Benefits* Reduce Stress for Affected Families, Professionals Increase Services Increase Objective Understanding of Autism * Proven in other health applications

  18. TM How the autism community shares knowledge, information and assistance

  19. Autism and Teletherapy? Interactive / Real-time Compliments of CNow / AdvoServ

  20. Autism and Teletherapy Interactive / Real-time Tele-therapy Tele-work

  21. Rick Jubeck

  22. What is ATEP? • Autism Teletherapy & Education Project • A joint effort which includes the expertise of Scotty Group of the Americas, talkAutism™, Princeton Autism Technology, and other interested collaborators • A Telehealth product incubator that ‘listens’ to the autism community

  23. Project Goals • Research & Develop the adoption of IP videophones & electronic health record for autism treatment, education and beyond. • Establish pilot programs across the country in academic environments. • Identify, develop and secure funding sources for project operational and equipment requirements.

  24. ATEP Team • Why we will succeed and ‘make a difference’: • Our People • Our Vision • Our Partners • Our Supporters • Our Children

  25. VideoPhone Demo Stuart Ross

  26. Goal - ATEP • Show efficacy of IP Videophone telehealth: • Family Support • Treatment / Education • Research • Add Clinical champions, technology options • Help the autism community! • Andreas Boedenauer – Founder / CEO • Scotty Teletransport Corporation of the Americas

  27. Thank You!! Georgia Tech University January 18, 2005 Ron Oberleitner – TalkAutism admin@talkautism.org Rick Jubeck – Scotty Group r.jubeck@scottygroup.com Stuart Ross – Scotty Group s.ross@scottygroup.com www.autismtechnology.org

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