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Identifying Patients with Learning Disabilities: A Critical Inquiry for Improved Healthcare Access

This report discusses key recommendations and issues highlighted by the Confidential Inquiry into the deaths of people with learning disabilities, emphasizing the importance of identifying and accommodating these individuals in healthcare settings. The lack of identification in GP referral letters and hospital records, along with the need for reasonable adjustments, are key concerns impacting healthcare access for this vulnerable population. Failure to identify patients with learning disabilities leads to missed appointments, poor access to healthcare, and data gaps that hinder commissioning priorities. Recommendations include addressing patient sensitivities, improving data sharing protocols, and ensuring systems are flexible to respond effectively.

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Identifying Patients with Learning Disabilities: A Critical Inquiry for Improved Healthcare Access

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  1. Confidential Inquiry into the deaths of people with learning disabilitiesIdentifying patients with learning disabilities Pauline Heslop Anna Marriott

  2. Identifying patients with learning disabilities • One of the key recommendations of the Michael report in 2008. • The CI highlighted the continuing need to identify people with learning disabilities in healthcare settings to avoid their serious disadvantage.

  3. Key issues • Lack of identification in: • GP referral letters • Hospital record systems • Lack of awareness that reasonable adjustments might be required. • Limited ability to extract data about people with learning disabilities.

  4. Impact of not identifying patients x • Reasonable adjustments not provided. • Poor access to healthcare services. • Missed appointments, with associated cost. • Unable to extract data about people with learning disabilities to feed into JSNAs. • Lack of intelligence to support commissioning priorities.

  5. Considerations • Patient sensitivities. • Effective data sharing protocols. • Systems must be flexible enough to respond to the information.

  6. The way forward?

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