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Risk adjustment and other reporting issues. Shalini Santhakumaran NDAU Statistician Imperial College London. Why report outcomes ?. Comparison. Transparency. Audit. Commissioning. Accountability. Improvements in neonatal care and outcomes. Data Issues . Completeness Accuracy .
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Risk adjustment and other reporting issues Shalini Santhakumaran NDAU Statistician Imperial College London
Why report outcomes ? Comparison Transparency Audit Commissioning Accountability Improvements in neonatal care and outcomes
Data Issues • Completeness • Accuracy
Data Issues Completeness Accuracy • Agreed case definitions
Data Issues Completeness Accuracy • Agreed case definitions • Neonatal transfers
Analysis issues • Unadjusted data is useful for some purposes • For others a more detailed analysis is required
Analysis issues • Unadjusted data is useful for some purposes • For others a more detailed analysis is required • 3 reasons for variation in outcome:
Analysis issues • Unadjusted data is useful for some purposes • For others a more detailed analysis is required • 3 reasons for variation in outcome: • Differences in case-mix • Random variation • Differences in care provided
Analysis issues • Differences in case-mix • Random variation • Differences in care provided • Selection of variables • Use of appropriate statistical models • Cannot completely control for case-mix
Analysis issues • Differences in case-mix • Random variation • Differences in care provided • Occurs by chance even if the underlying mortality rate is the same for all providers • Illustrate significance using funnel plots
Funnel plot for adjusted SMR 95% confidence interval limits = “warning” 99.8% confidence interval limits = “alarm” ●= complete networks ○= incomplete networks
Analysis issues • Differences in case-mix • Random variation • Differences in care provided • Not necessarily due to good/poor performance • ‘Constant risk fallacy’ and other local effects • Cannot tell us whether deaths were preventable • Needs to be linked to process measures
The National Neonatal Database • Individual, not aggregated • Population-based • Detailed clinical record • Electronic • Collaborative access to denominator data
The National Neonatal Database • Individual, not aggregated • Population-based • Detailed clinical record • Electronic • Collaborative access to denominator data • …ideal for reporting outcomes
Acknowledgements • All neonatal units contributing to the NDAU • NDAU Team • NDAU Steering Board • Jane Abbott (BLISS) Jacquie Kemp • Prof. Peter Brocklehurst Prof. Azeem Majeed • Prof. Kate Costeloe Prof. Neena Modi • Prof. Liz Draper Prof. Andrew Wilkinson • Imperial College London Academic Neonatal Medicine Unit