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James Milewski Mentor: Yunan Chen, Assistant Professor Informatics

Consumer health informatics and chronic illness: gathering requirements in context for a personal health information management system. James Milewski Mentor: Yunan Chen, Assistant Professor Informatics. Personal Health Information Management PHIM. Why we engage in PHIM PHIM Challenge

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James Milewski Mentor: Yunan Chen, Assistant Professor Informatics

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  1. Consumer health informatics and chronic illness: gathering requirements in context for a personal health information management system James Milewski Mentor: Yunan Chen, Assistant Professor Informatics

  2. Personal Health Information ManagementPHIM • Why we engage in PHIM • PHIM Challenge • Mediums + Distributed Sources + Demands of Health Care System = Work • Health Information at Home Spheres of Influence on PHIM

  3. Consumer Health Informatics:Approaching PHIM in the Home • Medical Informatics/Consumer Health Informatics • CHI: Reaching the patient through computers and telecommunication systems (Eysenback 2000) • Sociotechnical approach to explore interwoven networks of people, tools, routines, sources, and responsibilities of the patient

  4. Previous Works • The concept of work in the home (Corbin 1985) • Privacy of Health: The consumer’s perspective. (Bartolo 2004) • The Work of Health Information Management in the Household (Moen 2005) • Information Work in the Chronic Experience (Souden 2008)

  5. Why Diabetes? • Chronic Illness : 78% of health care expenditure (Holman 2005) • Previous work focused on diabetes • Personal understandings of illness among people who have type 2 diabetes (Hornsten et al 2004) • Harnessing the potential of the Internet to promote chronic illness self management: diabetes as an example of how well we are doing (Bull et al 2005) • Health communication and knowledge construction (Ginman et al 2003)

  6. Purpose Understand the in-home PHIM process of type 2 diabetes patients and their support group • Transitions • Technologies • Challenges of managing • How info seeking and tech use change over time

  7. Methodology • Qualitative study based on in-depth interviews • Participant Recruitment • In-home session collecting data from questionnaire, photos, and interviews

  8. Questionnaire DataSources of Diabetes Information

  9. Understanding of diabetes and its treatment 12 Patients with a mean of 11.5 years as a diabetic

  10. Most Difficult Part of Managing Your Diabetes Patients were asked to rank the following areas with 1 being the most difficult

  11. 37 Photos Technology: “We’re you busy yesterday?” Durable Media

  12. Transcription Coding Using Grounded Theory: Independent coders sift, chart, and sort material according to key issues and themes until a consensus is reached for the codes.

  13. Preliminary Results and Implications • Patients with type 2 diabetes and their support networks • Shift away from paper-based media to various technologies • Rely on IT-enabled diabetes management • Eager for new technologies to augment the home-based PHIM process • PHIM system adoption factors • Perceived usefulness and the perceived ease of use across the span of the disease

  14. What’s next? • Cont’d gathering data: recruit 5 more participants • Extracting software requirements and use case scenarios • Prototype implementation and testing

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