Research Data Standards Peter Knight Deputy Director – Research Information and Intelligence

1. Research Data StandardsPeter KnightDeputy Director – Research Information and Intelligence 3rd September 2013 DH – Leading the nation’s health and care

2. Data Standards in Research • To response to Royal Society of Chemistry - ChemSpider database: • The Department of Health welcomes the idea and has a similar initiative underway, via the, National Institute for Health Research; • This initiative started because: • Different concepts / different points of the research cycle • An example is: “Start Date” – 14 definitions DH – Leading the nation’s health and care

3. Data Standards in Research • Setting the scene for change: • NIHR Information Systems Strategy 2013: “The expectation for each NIHR Business Unit is that they will work locally to adopt data standards that enable data integration wherever possible” • Including 13/14 objective: • Develop Data Standards Group and issue initial draft of NIHR Data Dictionary • NIHR Vision, Strategy, Actions and Metrics plan (VSAM): • identifies development and delivery of consistent data standards as a key action underpinning strategy for optimising the NIHR research system. DH – Leading the nation’s health and care

4. What the work is happening in the NIHR • Aims • Creating a consistent set of core data standards across the NIHR, promoting their adoption and use within agreed timeframes. • Driver • A common need to work more effectively with the same information and report it consistently to stakeholder and the Department. • Benefits • Reduce time incurred by DH in reconciling information provided from different parts of the NIHR; • Improve interoperability between NIHR organisations, resources can spend time on other value-adding activities; • Improve researchers’ experience – data is entered once then reused; • Increase the attractiveness of the UK research offering (a) attracting further investment, b) as a good place to carry out research); • Enhance the research and international presence, supporting the “health and wealth” remit and specifically the IS Strategy goals. DH – Leading the nation’s health and care

5. Guiding Principles of the work • PRINCIPLE 1 Data standards in use across NIHR should be centrally held, managed and made readily accessible • PRINCIPLE 2 The Data standards across NIHR should be driven both bottom up, enforcing standards at data collection phase and top down, enforcing data standards applied to all centralised DH reporting • PRINCIPLE 3 Use of existing credible externally maintained and managed standards, whereby NHS and Health data standards should generally be adopted where ever possible • PRINCIPLE 4 Establish a NIHR Core Data Model • PRINCIPLE 5 The concept of master data management should be implemented for all standards • PRINCIPLE 6 Collaborative Framework DH – Leading the nation’s health and care

6. Data Standards in Research • This work has recently developed and being piloted; • Good progress is being made on building a core data set for the NIHR; • An example is the NIHRInfo Project established to utilise the core data set and establish for the FIRST TIME a relevant pan NIHR research view of information. DH – Leading the nation’s health and care