Just Talk About It: Using Videos as Triggers for Advance Directive Discussions

1. Just Talk About It: Using Videos as Triggers for Advance Directive Discussions

2. Objectives • Review the process of developing advance directives • Identify the benefits of using videos as triggers for advance directive discussions • Describe how to facilitate advanced directive discussions

3. Take Charge of Your Life The mission of the Take Charge of Your Life Partnership is to educate, support and empower all people to deal with end-of-life issues through outreach to consumers, professionals, community organizations and corporations.

4. History: 2000 • On Our Own Terms: Moyers on Dying • If we are going to change the way we die, then we are going to have to start talking about it, and then, take action. • End-of-Life Partnership of Western PA • National Issues Forum

5. History: 2001-2002 • 501(c)(3) non-profit status • Take Charge of Your Life campaign • Rethinking End-of-Life Care – Continuing the Conversation • And Thou Shalt Honor

6. History: 2003-2004 • Take Charge of Your Life Partnership • Take Charge Online • Rallying Points grant • Heart2Heart online interviews • Award of Excellence from Rallying Points

7. History: 2005-2006 • Coalition for Quality at the End of Life (CQEL) • Community Conversation • Plenary meetings

8. History: 2007… • Improving End-of-Life Experience's for Pennsylvanians • Just Talk About It videos

9. TakeChargeofYourLife.org

10. FAQ’s

11. Definitions • Advance Directives • Living Will • Power of Attorney

12. Definitions • Healthcare Agent • POLST/MOLST

13. Just Talk About It Video Project • Raise awareness • Provoke thought • Stimulate discussion • Motivate participants toward action

14. Discussion Guides • Individual • Group

15. Just Talk About It Discussion Video Guides • Advance Care Planning • A Family Way • A Friend in Need • Where There’s A Will • Caregiving • Support Group • So Guilty • Conference Call

16. Just Talk About It Discussion Video Guides • Hospice and Palliative Care • Hospice in the Home • Sooner Rather Than Later • Nursing Home Hospice • Pain Management • What’s Right For You • I’m Fine • Old Buddies

17. Group Discussion Guide • Gather a group • Review the topics • Select one or more scenarios • Introduce a topic • Break into groups • Discuss the challenges and opportunities • Regroup and empower participants to “take charge”

18. Just Talk About It Video Discussion Group Guides • Introduction • Scenarios • Discussion points • Questions • Possible answers • Options

19. Advance Directive Videos

20. A Family Way

21. A Family Way Why would someone who is just having knee surgery need an advance care directive (living will)?

22. A Family Way What are the barriers to completing an advance directive (living will)?

23. A Family Way What are the advantages of discussing an advanced directive (living will) with your family and healthcare practitioner?

24. A Friend in Need

25. A Friend in Need What important factors should you consider about yourself and about the person you will choose as health care agent?

26. A Friend in Need How might religious beliefs, age, marital status and ethnic background impact your decision about naming a health care agent?

27. A Friend in Need What are the benefits of naming a health care agent?

28. Where There’s A Will

29. Where There’s A Will When thinking about end-of-life issues, how might biases or stereotypes affect those who are physically or mentally challenged?

30. Where There’s A Will What other groups of people might face the similar fears of not having their wishes respected?

31. Where There’s A Will How can advance care planning restore a sense of “control” to those who are mistakenly seen as “unable to think for themselves”?

32. Caregiving Videos

33. Support Group

34. Support Group What barriers keep family caregivers from seeking support?

35. Support Group What are some of the challenges and fears of older family caregivers? • …younger family caregivers?

36. Support Group Why is it important for caregivers to take care of themselves?

37. Go Guilty

38. So Guilty In what ways could the burden of responsibility impact the wellbeing of the family caregiver: physically, emotionally, socially, and spiritually?

39. So Guilty How can families, friends, and healthcare professionals best support the full-time family caregiver to prevent burnout?

40. So Guilty How can the full-time family caregiver best identify and communicate his/her needs to family, friends, and healthcare professionals?

41. Conference Call

42. Conference Call What factors have made “long-distance caregiving” a necessity for many families?

43. Conference Call What are some of the caregiving challenges and concerns of large families? • …of very small families?

44. Conference Call In addition to conference calling, what are some creative ways in which families can participate in the care of a loved one when they live at a distance?

45. Hospice and Palliative Care Videos

46. Hospice in the Home

47. Hospice in the Home What cultural, ethnic, religious and gender beliefs might interfere with accepting “outside help”?

48. Hospice in the Home What misunderstandings about hospice prevent eligible patients from receiving this care?

49. Hospice in the Home In what ways can hospice care at home benefit the patient? • ... the family?... • the patient’s primary care provider?

50. Sooner Rather Than Later