1 / 14

Comparing User-Led Personal Assistance in the EU

Critical analysis of PA schemes in the EU from a perspective of independent living philosophy and social model of disability. Survey and checklist results from various countries, urging policy makers to address issues.

ecox
Download Presentation

Comparing User-Led Personal Assistance in the EU

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. User-Led Personal Assistance in the EU: A Critical Comparative Analysis Teodor Mladenov (teomladenov@gmail.com) Senior Lecturer, School of Education and Social Work, University of Dundee This project has received funding from the European Union’s Horizon 2020 research and innovation programme under the Marie Sklodowska-Curie grant agreement No 747027. This document reflects only the author’s view. The Research Executive Agency of the European Commission is not responsible for any use that may be made of the information it contains.

  2. AIM to compare and assess PA schemes in the EU from the perspective of the independent living philosophy and the social model of disability APPROACH participatory approach – involve PA users and independent living activists at key stages of implementation METHODS a survey and a checklist

  3. PA SURVEY – content Instruction: Please, evaluate each statement on a scale from -3 to +3, where: • -3 means that what is described HINDERS users’ choice and control to maximum extent • 0 means that what is described NEITHER HINDERS NOR ENABLES user’s choice and control • +3 means that what is described ENABLES users’ choice and control to maximum extent Exemplary statements (138 in total):

  4. PA SURVEY – implementation Period:19 January – 4 March 2018 Platform: Google Forms Dissemination: email and ENIL’s newsletter Response: 54 completed questionnaires returned • 35 (65%) ‘personal assistance users’ Results:‘What is good personal assistance made of? Results of a European survey’ (Disability & Society, 2019)

  5. PA SURVEY – geographical coverage • Armenia (1) • Austria (1) • Belgium (3) • Bulgaria (4) • Estonia (1) • France (2) • Greece (4) • Hungary (4) • Ireland (1) • Italy (1) • Luxembourg (1) • Malta (1) • Montenegro (2) • Norway (3) • Netherlands (2) • Romania (2 • Serbia (3) • Spain (1) • Sweden (1) • Switzerland (1) • United Kingdom (8)

  6. PA CHECKLIST – development Of the 138 characteristics in the PA survey, 61 were retained based on: • their mean score – larger than +0.8 or smaller than -0.8, • at 95% confidence level, • using the Bonferroni correction.

  7. PA CHECKLIST – implementation Period:November 2018 – December 2018 Dissemination:17 independent living experts and PA users from 11 European countries: Belgium (including Flanders and Wallonia), Bulgaria, Croatia, Ireland, Italy, Norway, Serbia, Slovenia, Spain, Sweden, and the United Kingdom Response: 10 completed checklists from 8 European countries: Belgium (Flanders), Bulgaria, Ireland, Serbia, Slovenia, Spain, Sweden, and the United Kingdom

  8. PA CHECKLIST – Sweden Swedish expert’s comment: ‘80% of new applications [for PA under the scheme in Sweden] are currently turned down’

  9. PA CHECKLIST – Bulgaria • Bulgarian experts’ comments: • ‘the rate of payment (less than €2 per hour) does not allow the users to hire assistants on the labour market’ • ‘[i]n 95 % of the cases parents or relatives of people with disabilities become their PA which prevents them to have free choice and to live independently’

  10. PA CHECKLIST – cuts We urge decision makers at national and EU levels to reverse the cuts to PA!

  11. More information about the PA survey: Mladenov, T. (2019) ‘What is good personal assistance made of? Results of a European survey’, Disability & Society. DOI: 10.1080/09687599.2019.1621740 https://www.tandfonline.com/doi/full/10.1080/09687599.2019.1621740 More information about the PA checklist: Mladenov, T., Pokern, Y. and Cojocariu, I. B. (2019) PA Checklist – A Tool for Assessing Personal Assistance Schemes. Brussels: European Network on Independent Living. https://enil.eu/wp-content/uploads/2019/02/Mladenov_Pokern_Bulic-PA_Checklist.pdf Drop me a message: Teodor Mladenov, teomladenov@gmail.com

More Related