MuscleFacts

1. MuscleFacts An educational resource focused on people with physical disabilities to increase awareness and inclusivity.

2. Presentation Overview Muscular Dystrophy Canada and our services Neuromuscular Disorders Creating an inclusive classroom environment The MuscleFacts program

3. Muscular Dystrophy Canada Vision To find a cure for neuromuscular disorders in our lifetime. Mission To enhance the lives of those affected by neuromuscular disorders by continually working to provide ongoing support and resources while relentlessly searching for a cure through well funded research.

4. Muscular Dystrophy Canada Established in 1954. Over 150 different types of neuromuscular disorders are under the Muscular Dystrophy Canada umbrella. Fundraising efforts. 5 pillars of service.

5. 5 Pillars of Service Advocacy Education Equipment Information Support

6. Introduction to Neuromuscular Disorders

7. What is a neuromuscular disorder (NMD)? The term describes a wide range of conditions. All have in common a weakness caused by an abnormality in either the nerves or muscles. Many are hereditary (genetic). Most are progressive. Presently no cure; medication and other treatments help slow the progressive deterioration in muscle strength.

8. How do you get a neuromuscular disorder? Neuromuscular disorders are caused by genetic mutations (changed or altered gene, gene may be copied multiple times). Non-contagious, non-infectious. May be inherited, but some occur in families with no history. Some people are carriers

9. How are neuromuscular disorders diagnosed? Neurologists conduct tests to determine the specific type of neuromuscular disorder. Some children will have diagnosis at birth or prior to beginning school. Others will be having tests while school aged. Others will only be beginning to show signs and symptoms in later life.

10. Common Implications

11. People with disabilities get sick more often than others. TRUE or FALSE FALSE

12. Most people who use wheelchairs can feel their legs. TRUE or FALSE TRUE

13. A building with a wheelchair symbol is totally accessible for wheelchair users. TRUE or FALSE FALSE

14. If a child has a disability, it is probably an invisible disability. TRUE or FALSE TRUE

15. Someone who is affected by a neuromuscular disorder always has a physical and a cognitive disability. TRUE or FALSE FALSE

16. It’s okay to help a person with a disability without asking them first. TRUE or FALSE FALSE

17. People who are affected by neuromuscular disorders experience a lot of pain. TRUE or FALSE FALSE

18. Key Issues Mobility and physical activity Falling/losing balance Fatigue Upper limb function Personal care and comfort

19. Key Issues • Learning needs • Communication needs • Self image, emotional and psychological issues

20. Adapting Your Classroom • Needs change over time • Look at abilities rather than their disabilities • Reinforce independence

21. Adapting Your Classroom • Placement of materials in class • Adapting time dedicated to each activity • Plan activities accessible to all students

22. Collaboration • Other educators • Parents and child • Health care professionals

23. The MuscleFacts Program Educator presentations Classroom presentations School Resource guide Parent guide

24. Questions?Thank you! Contact: MuscleFactsWest@muscle.ca Everyone has different abilities and that is what makes our communities and schools special!