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Building FASD State Systems (BFSS) 2009 Meeting Albuquerque, NM May 13, 2009

SAMHSA’s FASD Center for Excellence: An Update Callie B. Gass Project Director FASD Center for Excellence. Building FASD State Systems (BFSS) 2009 Meeting Albuquerque, NM May 13, 2009. The Native Initiative.

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Building FASD State Systems (BFSS) 2009 Meeting Albuquerque, NM May 13, 2009

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  1. SAMHSA’s FASD Center for Excellence: An UpdateCallie B. GassProject DirectorFASD Center for Excellence Building FASD State Systems (BFSS) 2009 Meeting Albuquerque, NM May 13, 2009

  2. The Native Initiative • SAMHSA and the Center for Excellence began bringing together an American Indian/Alaskan Native/Native Hawaiian Expert Panel Expert Panel earlier this year. • The Center’s contract was recently modified to include extensive effort to address FASD in these populations. • The Native Expert Panel will meet for the first time here this week.

  3. The Native Initiative • Over the next four years, the Native Initiative will: • Conduct environmental scan of current efforts to address FASD in Native American communities; • Plan and implement Native Leaders Regional Meetings to bring together Native leaders and elders to discuss the issue of FASD; • Convene annual Native Stakeholders Group to provide expert guidance on the initiative; • Provide support for the implementation of Tribal FASD Task Force in select Tribes and communities; • Provide training and technical assistance to tribal entities and communities; and • Expand and update the Native American Resource Kit.

  4. The Birth Mothers Network (BMN) • Established in 2005 to increase support for birth mothers, to strengthen recovery for women who drank during pregnancy, and to support their families. • Over 75 birth mothers in the BMN database. • Actively collaborates with organizations that serve birth mothers and with existing FASD Task Forces and FASD State representatives. • Also works with the NOFAS American Indian Advisory Committee and with the Community Health Clinics that serve American Indian and Alaskan Native populations. • Now linked to the NOFAS Web site (http://www.nofas.org/coh/default.aspx).

  5. New State Systems of Care Page • Center’s Web site now features an interactive map where visitors can research FASD-related activity in every state. • Just takes one click on any state...

  6. New State Systems of Care Page

  7. New State Systems of Care Page • Also a second research page broken into categories: • Legislative information • Health departments • FAS and FASD resources • Task Forces • Interactive page features a feedback mechanism - please share your thoughts!

  8. New Spanish-Language Site • The Center also launched an extensive Spanish-language version of its official Web site in December, 2008. • Entire site now available for navigation in Spanish...

  9. New Spanish-Language Site

  10. Use of the Web Site and IRC • Number of total visits to the site up 13.6% from previous month, to more than 36,000. • Average length of a visit to the site is over 50 minutes (was less than 15min in 2004). • Center’s Web site is a top-five search return for the term “FASD” on major search engines. • Information Resource Center (IRC) has fielded more than 130 inquiries thus far in 2009 • Fielded more than 450 in 2008.

  11. Popular Publications • The Center’s most downloaded products in March, 2009: • FASD—the Basics (5,944 downloads) • Reach to Teach: Educating Elementary and Middle School Children with Fetal Alcohol Spectrum Disorders (5,558 downloads) • Creating Hope for Women in Recovery: A Web Guide to Planning an FASD Summit (1,504 downloads) • What You Need to Know: Understanding Fetal Alcohol Spectrum Disorders by the Numbers (1,357 downloads)

  12. Training andTechnical Assistance • The Center has conducted 14 trainings and technical assistance (TA) events since our Expert Panel meeting in December, 2008. • Held in six (6) different states: Arkansas, California, Georgia, Pennsylvania, South Dakota, and Texas. • Both first-time and follow-up events, delivered to more than 300 participants.

  13. Subcontractor Activities • Second round of subcontracts began in February, 2008. • Twenty-three (23) local, State, and juvenile court subcontracts awarded. • Implementation fully underway since October 2008. • Aggregate data on screening and program participation and early findings on implementation now being compiled.

  14. Subcontractor Activities • Thus far, we have identified the following training and technical assistance needs: • Strategies for recruiting eligible candidates who may be reluctant to participate; • Mechanisms for ensuring fidelity to intervention model (supervisor strategies for monitoring implementation); • Questions on implementing screening and other data collection instruments; • Refresher and new staff training on intervention; • Basic training on FASD; and • Developing service plans based on diagnostic recommendations.

  15. Recent andUpcoming Presentations • Representatives of the Center spoke or will soon present at the following conferences and events: • National Youth at Risk Conference, March (Savannah, GA) • U.S. Public Health Service’s Nursing Recognition Day, May (Bethesda, MD) • U.S. Public Health Service Conference, June (Atlanta, GA)

  16. Recent andUpcoming Presentations • The Center has also submitted a panel presentation to the American Public Health Association (APHA) Annual Meeting & Exposition: • Meeting to be held in Philadelphia, PA in November, 2009. • If accepted, will be an exciting opportunity to get FASD on the radar in other public health arenas.

  17. The National Association of FASD State Coordinators • Four new member states added to NAFSC in 2008 and 2009: Massachusetts, Washington, Pennsylvania, and North Carolina. • Quarterly teleconferences held in February and August of last year, and February of this year. • Members have approved a mission statement and presented ideas for development of a Web page. • Want to review some of the measurable State-level activity over the last five years…

  18. 2003-2008 Capacity Measures:State Coordinator Responsibility States that have an office or coordinator concerned with: 7 States did not respond in 2008 Survey was not conducted in 2007 6 States did not respond in 2006 5 States did not respond in 2005 5 States did not respond in 2003

  19. 2003-2008 Capacity Measures:Reporting State Guidelines States that have reporting guidelines specific to: 7 States did not respond in 2008 Survey was not conducted in 2007 6 States did not respond in 2006 5 States did not respond in 2005 5 States did not respond in 2003

  20. 2003-2008 Capacity Measures:Caring for Families Affected by FASD State offers FASD-affected families the following services/guidelines 7 States did not respond in 2008 Survey was not conducted in 2007 6 States did not respond in 2006 5 States did not respond in 2005 5 States did not respond in 2003

  21. 2003-2008 Capacity Measures:Prevention of FASD States with established FASD prevention policies: 7 States did not respond in 2008 Survey was not conducted in 2007 6 States did not respond in 2006 5 States did not respond in 2005 5 States did not respond in 2003

  22. 2008 BFSS Meeting Follow-Up Calls with FASD State Coordinators • These initial findings include States who had completed a follow-up conference call by April 10, 2009 • The most common goals: • Increasing public awareness regarding FASD • Building partnerships with State agencies and other organizations • Resources from State to help achieve goals: • Funding • Staff/Personnel/State Coordinator • Support/Services for families and emerging adults • Prevention and Diagnostic services • Collaboration across State agencies • Legislative Support • FASD Trainings

  23. SAMHSA FASD Center for Excellence Task Order Officer: Patricia B. Getty, Ph.D.Project Director: Callie B. Gass 2101 Gaither Road, Suite 600Rockville, MD 20850 1-866-STOPFAS (786-7327) http://www.fasdcenter.samhsa.gov/

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