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Identifying Qualified Audiologists for Assessment of Babies. National EHDI Conference Atlanta, Georgia Faye P. McCollister, EdD Consulting Audiologist, Professor Emeritus, University of Alabama Fmc901@earthlink.net. Need for Audiologists With Very Specific Skills. Pediatric audiology
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Identifying Qualified Audiologists for Assessment of Babies National EHDI Conference Atlanta, Georgia Faye P. McCollister, EdD Consulting Audiologist, Professor Emeritus, University of Alabama Fmc901@earthlink.net
Need for Audiologists With Very Specific Skills • Pediatric audiology • Counseling • Team management • Intervention with very young children with hearing loss
Qualified Audiology Provider • Appropriate state, national credentials • Appropriate pediatric experience, with children less than 6 months of age • Appropriate diagnostic equipment • Interest in providing family-centered audiological management
Status of EHDI Programs :Audiological Diagnosis • Equipment and techniques for diagnosis of hearing loss in infants continues to improve • State coordinators estimate only 56.1% “receive diagnostic evaluations by 3 months of age
Changes in Population Characteristics • Population Served Includes Very Young Children • The Population Served has Increased • Consumers of Early Intervention Services are Knowledgeable Regarding their Rights and Options Available
Changes in Population Characteristics • Delayed Onset Hearing Loss • Fluctuating Hearing Loss • Progressive Hearing Loss • Mild and Unilateral Hearing Loss Identified Early
Multiple Disabilities • About 30% of children with hearing loss have multiple disabilities (CADS, Gallaudet) • Will require interdisciplinary team management
Change in Use of Risk Indicators: Still Important • JCIH risk indicators known to miss 50 % • JCIH risk indicators not always evaluated (congenital infections, Conexin 26 gene) • Parent report, medical record review can not give complete results • However, knowledge of indicators gives opportunity to define etiology, provide better hearing loss management
Congenital CMV Infection • Most frequently occurring congenital viral infection in man, herpes virus, 60–80 % adults infected • 40,000 babies infected annually • 90-95 % asymptomatic; 10 % symptomatic • Symp 40.7% have HI = 1,628 • Asymp. 7.4 % Have HI = 2,664 • Total HI = 4,292 About 35 % of pediatric HI results from CMV
Connexin 26 • Protein responsible for intracellular communication (transfer of ions between the hair cells in the cochlea and their support cells) • Responsible for 20-30% of congenital hearing loss
Connexin 26 • Several different mutations • Usually recessive, occasionally dominant • Almost always results in hearing loss that is: • Congenital • Severe-profound • Non-progressive • Non-syndromic
Vigilant Surveillance Required • Estimated that about 16 % of Hearing Loss is Delayed in Onset • Educate Parents • Educate Primary Care Providers • Provide Information on Normal Auditory Development • Provide Information of Signs and Symptoms of Hearing Loss
Collaboration • AAA • ASHA • State Licensure Boards • State Audiology Associations • State Speech and Hearing Organizations
Benefits of Identifying Qualified Audiologists • Faster, more accurate diagnosis • Decrease number of children lost to follow-up • Decrease parental anxiety
Program Evaluation Instruments • Audiology Survey Instruments • Colorado • Wisconsin • Utah • Arizona • Generic • Ohio Infanthearing.org
Survey Development • Demographic Information • Individual or facility, confidentiality • Interest • Want to be included • Do not have skills, need training • Equipment • Sufficient to perform rec. protocols • Experience • Numbers, ages, sedation, hearing aids ….. • Protocols Documented
Survey Development • Efficiency/Timeliness • Intervals between diagnosis/hearing aid fitting • Referral to intervention • Tracking/Reporting • Referrals made • Statistical information • Team Management • Medical • Intervention • Parental Support • Materials provided
National EHDI Technical Assistance System • EHDI Network members located in each of the MCHB regions • Information dissemination and training • Web site (www.infanthearing.org) • Collaboration with other groups and agencies
NCHAM Network Activities • Workshops on Pediatric Diagnostic Audiology • 6 weeks of on-line preparation • 2 day face-to-face workshop • 3 month follow-up practicum
Brings Better Opportunities To Babies and Young Children With Hearing Loss Efficient Hearing Screening and Diagnostic Audiological Services….