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Mission:

Mission: To increase the availability of quality palliative care services in hospitals and other health care settings for people with advanced illness. National Program Office of RWJF- Mount Sinai December 1999-July 2006. www.capc.org. Medicare Hospice Benefit. Life Prolonging Care.

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Mission:

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  1. Mission: To increase the availability of quality palliative care services in hospitals and other health care settings for people with advanced illness. National Program Office of RWJF- Mount Sinai December 1999-July 2006 www.capc.org

  2. Medicare Hospice Benefit Life Prolonging Care Life Prolonging New Hospice Care Care Bereavement Palliative Care Dx Death Conceptual Shift Old www.capc.org

  3. CAPC’s Original Goals and Outcomes • Goal: To increase the number and quality of palliative care programs in the U.S. • Outcomes: 98% increase in number of programs from 668 to 1320 between 2000 and 2004 based on AHA annual survey • How did we get here? www.capc.org

  4. Principles in the Diffusion of Innovation • Compelling quality issue- suffering among chronically and seriously ill in hospital settings • Consistent focus- hospital palliative care • Audience-specific marketing- leaders, managers, clinicians, patients, families, the public • Products- designed to fit each audience & stage of need/readiness • Business case- reduces hospital LOS and cost/day • Concrete tools- no reinvention of the wheel, lowered opportunity costs • Strategic planning- stages of change, information processing, and organizational innovation theories www.capc.org

  5. Data Making the Quality Case Pain Nausea Severe Severe Mod. Mod. Mild Mild None None Shortness of Breath Anxiety Severe Severe Mod. Mod. Mild Mild None None www.capc.org 1997-2004: 3219 palliative care consult service patients

  6. PRODUCTS: A Guide to Building A Hospital-Based Palliative Care Program • Business Plans • Financial Analysis • Assessment Tools • Handling Referrals • Staffing Issues • Clinician Billing • Marketing • Protocols www.capc.org

  7. www.capc.org 21,000 unique visitors/month

  8. Training for Program Development CAPC Seminar, Seattle, 6/02 CAPC Seminar, MN, 5/04 Fairview CAPC Seminar, Oakland, 7/01 CAPC Seminar, New York, 10/04, 4/01 CAPC Seminar, Chicago, 10/01, 11/06 CAPC Seminar, Philadelphia, 3/03 CAPC Seminar, Washington, DC, 12/00 CAPC Seminar,San Diego, 10/03, 10/05 CAPC Seminar, Miami, 3/05 CAPC Seminar, New Orleans, 10/02 13 CAPC Seminars on Building Hospital-Based Palliative Care Programs>3,000 CAPC Seminar Attendees, 95% rate ‘highly likely’ to help them establish their own program.

  9. On-site Training for Palliative Care:Palliative Care Leadership Centers Fairview Health Services Fairview Medical College of Wisconsin University of California, San Francisco Mt Carmel Massey Cancer Center Hospice of the Bluegrass • 538 Hospitals/Health Systems, Hospices • 2250 PCLC Visitors • 60% establish new program by 1 yr. www.capc.org

  10. Outcomes: U.S. Hospital Based Palliative Care Programs (AHA Survey 2004)

  11. CAPC Objectives: 2006 - • Palliative care program reported by 66% of hospitals with >100 beds in the U.S. • Spread palliative care to nursing homes • Advanced content for new constituency of leaders • Educate/influence policy makers, JCAHO, payers • Secure long term sustainability through philanthropy/development, sales, membership organization, other. www.capc.org

  12. Generalizable Principles • Specific mission • Quality and business case • Designed to go to scale from Day 1- our goal is 65% of >100 bed hospitals • Social Marketing to frame issue relevance for each audience • “Reason you became a doctor/nurse” for Clinicians • “Business case” for Administrators • "Service message" for Colleagues • "Best quality care added to appropriate treatment" for Families • Technical assistance decreases transition+opportunity cost –no reinvention of the wheel • Significant resources for marketing and communications • Building connections with national organizations and leaders- JCAHO, VA, UHC, VHA, AHA, Adv Bd, NHPCO, AGS, GSA, AARP • Practical evaluation to refine offerings as needs of audiences changed • Investment in a new generation of leaders www.capc.org

  13. Sustainability Strategies: 2006 - Now supported by funding collaborative of 6 national foundations. Future plan: Create a diversified portfolio of support • Explicit foundation cultivation efforts both national and regional- “the breakfast club”. • Increasing income streams from product sales: courses, training, e-learning, publications, consultation. • Membership fees for on-line resources, web-based data network for QI and analyses. • Development infrastructure: Advisory Board/volunteer leadership; development staff support; public and philanthropic outreach. • Affiliation with existing membership orgs. • We have rejected pharma (so far!) www.capc.org

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