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NILS: An Introduction

NILS: An Introduction. Rónán Adams NILS User Forum 11 th December 2009. What is The NILS?. Northern Ireland Longitudinal Study (NILS) Managed in “safe setting” at NISRA HQ 28% Sample of N.I. population Database of administrative records linked over time

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NILS: An Introduction

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  1. NILS: An Introduction Rónán Adams NILS User Forum 11th December 2009

  2. What is The NILS? • Northern Ireland Longitudinal Study (NILS) • Managed in “safe setting” at NISRA HQ • 28% Sample of N.I. population • Database of administrative records linked over time • Drawn from Health Card Registration Data • Linked to other datasets (2001 Census, Vital events) • Northern Ireland Mortality Study (NIMS) • 100% of deaths in N.I. 2001-2007 linked to 2001 Census

  3. Establishing The NILS • Funded by HSC R&D function of the Public Health Agency • Managed Under Census legislation • Research Proposal initiated in 2003 • Launched December 2006 • Data Custodian is Registrar General for N.I.

  4. NILS Security- ‘Secure Data, Safe Setting’ • Supervised “safe setting” for researchers -NILS RSU • All datasets completely anonymised • Closed network • Strict Disclosure Control Policy • I.T. Security, Data managed by Core NILS (NISRA) staff • Security Agreements & NILS Licence • Legal Approval-Data Transfer Agreements • Ethical Approval

  5. Management of The NILS • NILS Steering Group (SG) • Responsible for Strategic Direction • NILS Research Approvals Group (RAG) • Manage Research Applications Process • NILS User Forum • Input from researchers • Represented on SG • NILS Research Support Unit (RSU) • ESRC funded. Established April 2009 • Expert support for NILS researchers. Assist with applications, analysis, NILS promotion, upholding NILS security

  6. NILS Research-Some Examples • ‘Predicting Short Run Changes in Fertility in Northern Ireland’ • ‘Mortality amongst residents of nursing and residential homes in Northern Ireland’ • ‘Describing and Modelling Internal Migration in N.I. 2001-2006 using the NILS: Individuals, Households and Places’. • Breast Screening Exemplar Project

  7. NILS-RSU Contact Details • Do you have an idea for a NILS Project? • Michael Rosato 028 9082 8210 • Gemma Catney 028 9034 8199 • Email: nils-rsu@qub.ac.uk • Website: www.qub.ac.uk/nils

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