SUPPORTED DECISION MAKING CONFERENCE From Theory to Practice

1. SUPPORTED DECISION MAKING CONFERENCE From Theory to Practice Melbourne – October 18th 2013 Cher Nicholson Supported Decision Making Training Project Officer Health and Community Services Complaints Commissioner

2. EVERYONE EQUALITY HUMAN RIGHTS EVERY DAY EVERYWHERE

3. HCSCC Charter of Rights • Access • Safety • Quality • Respect • Information • Participation • Privacy • Comment

4. Overview of SDM Facilitation Training Trainer – Cher Nicholson HCSCC Overseas Participants - 2 Strathmont 2 Minda 2 Leveda 2 CARA 2 Individualised Funding 2 Playford Council 1 STAR 1 UC Mental Health Service 1 8 8 8 8 8 4 4 4 12 12 12 12 12 6 6 6 12 12 12 12 12 6 6 6 Informal Networks - 78 Decision Makers/ Clients - 26 Supporters - 52 Service Providers - 78 TOTAL 247 Workshop Participants - 13

5. Breakdown of numbers in a single unit of training Trainer – Cher Nicholson HCSCC Trainee Facilitator Decision Makers/Clients Supporters Informal Networks Service Providers PLUS Community Networks, such as SA Housing and Centrelink = 20 (including Trainer)

6. SDM Practice Model Facilitator Supporter - Friend Supporter - Mum Supporter – Work mate Supporter – Other family Decision Maker Service Providers

7. Overview of SDM TrainingTrainer - Cher Nicholson • Facilitator – Trainee • Two weeks skills intensive • Weekly mentoring/coaahing with own clients in their workplace by trainer • Paid peer consultants with lived experience of disability that were in the previous trial as decision makers • Supporters from previous trial paid as consultants • Each service provider showcases their organisation to other participants telling of the philosophy, service provision & eligibility. • Trainee group becomes a resource group & support. • System & culture change from within services.

8. Safety Measures • Police Check as warranted • Supervision discussion • Clarity of roles • Regular review by Facilitator • Follow selection process • Managing Conflict • Involving Decision Makers networks • Maintaining and enhancing relationships • Connecting to Services and Local Community • Adherence to service providers policies and procedures

9. Community Development Training Model Health and Community Services Complaints Commissioner • Builds on the developed SDM model produced by OPA • Components of the SDM Training Model: • Uses community development principles • Works with formal and informal networks • Honours the role of the facilitator • Within the model, the Decision Makers’ network acts as a team for the expressed wishes of the Decision Maker, further enhancing desired outcomes

10. Community Development Training Model cont. Health and Community Services Complaints Commissioner • Invites service providers to view their client numbers as a whole network rather than an individual person with a disability • Model invites all parties to measure success in a different way • Success is not the enacting of the decision, but whether there is an environment where decisions can be made and rights are upheld • Uses peer consultants with lived experiences to describe, communicate, and evaluate our practice (paid)

11. Community Development Training Model cont. Health and Community Services Complaints Commissioner • Acknowledge people with lived experiences of disability can use their previous negative experiences to understand what positive experiences they want for their future • Use the worker/participants (trainees) as a group resource to continually build practice • Peer consultants will use their lived experience to manage their disability to support others working with what IS the reality of their world (reframing) • Builds on existing ideas of support • Uses training for culture change within service systems

12. Community Development Training Model cont. Health and Community Services Complaints Commissioner • Model has moved forward from OPA model – taking the best of what worked well and safeguards • Works well with expressed wish and expands on it by working for and with the Person With Disability (PWD) outwards to their networks • Reverts to strength based practices – “Even small glimmers can beam” Cher • Training begins with intensive skills development workshops and continues with ongoing coaching and mentoring in the workplace for six months with the participants own clients – less chance of status quo

13. Community Development Training Model cont. Health and Community Services Complaints Commissioner • Higher chance of success through working with systems rather than just Decision Maker and Supporter • Works with the belief that it is possible for systems to change • Introduce supporters – STAR volunteers (mutual pairing) • Worker participants/trainees selected from key disability organisations that have previously experienced SDM through clients in OPA trial • Independently evaluated – realist evaluation (Gill Westhorpe)

14. Introduce Supporters • STAR volunteers will be utilised for Decision Makers that have no identifiable or desired supporters • STAR volunteers will remain connected to STAR, as well as the facilitator • These volunteers have completed a police check and are undertaking ongoing training appropriate for their volunteer role • The contract will be between the Decision Maker and the Volunteer

15. Any Questions?

16. Practice Reflections & Influences “I Have a Dream” Martin Luther King Jnr The “Power of One” Bryce Courtenay