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Evaluation of user/carer involvement in planning mental health services

Evaluation of user/carer involvement in planning mental health services. Professor Mary Watkins, Alan Miles & Andy Dickens. Introduction. South & West Devon Health Authority commissioned an independent evaluation 22-month evaluation period: Jan 2001 - Oct 2002. Health Authority project.

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Evaluation of user/carer involvement in planning mental health services

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  1. Evaluation of user/carer involvement in planning mental health services Professor Mary Watkins, Alan Miles & Andy Dickens

  2. Introduction • South & West Devon Health Authority commissioned an independent evaluation • 22-month evaluation period: Jan 2001 - Oct 2002

  3. Health Authority project • Previous consultation • Steering group • All stakeholders involved • Purpose

  4. Aims of the evaluation project • Collate data • Analyse data • Make recommendations for future user/carer involvement

  5. Literature review - user/carer involvement • Paradigm shift in 1990s (Edwards, 2000) • Levels of involvement (Goss & Miller, 1995) • Representativeness (Hopton, 1997; Forrest et al, 2000) • Best practice (Goss & Miller, 1995; Service First, 1999)

  6. Methods • Non-participant observation • Semi-structured interviews • Documentary analysis

  7. (1) Non-participant observation • Observed 5 steering group meetings • Used sociograms to record group dynamics • Meeting minutes supported observations

  8. (2) Interviews • Interview role-play with volunteers • Interviewed steering group members • users & carers (n=13) • managers (n=4)

  9. (3) Documentary analysis • Subscribed to ‘communication loop’ • Analysed all steering group correspondence

  10. Results • 4 principle themes: • Membership • Meeting style • Sharing perception • Having a voice

  11. (1) Membership • Minimal initial uptake • Purposive recruitment • ‘Open’ membership • Risk of unrepresentative sample

  12. (2) Meeting style • Chairing styles • Group interaction • Balance of responsibility • Reporting structure • Training

  13. (3) Sharing perception • Increased requests for representation • Barriers to productive working • Good links with organisations • Independence from Health Authority

  14. (4) Having a voice • ‘Listening & responsive’ level of involvement (Goss & Miller, 1995) • Ambiguous role of steering group • User/carer & manager collaboration

  15. Recommendations • Strategic recruitment • Forum structure • Training for managers and users/carers • Project Worker • Explicit good practice guidelines

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