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Health and Social Care Information Centre. Datasets Overview. Health and Social Care Information Centre (HSCIC). Established April 2005 as a result of Arms Length Body (ALB) Review and Lyons Review Brings together staff from former NHS Information Authority (NHSIA) and DH Statistics Division
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Health and Social Care Information Centre Datasets Overview
Health and Social Care Information Centre (HSCIC) • Established April 2005 as a result of Arms Length Body (ALB) Review and Lyons Review • Brings together staff from former NHS Information Authority (NHSIA) and DH Statistics Division • The HSCIC works to co-ordinate and streamline the collection and sharing of data about health and adult social care • Tasked with making information more accessible, reducing the burden, and strengthening the capacity for informed decision making
National Datasets Service within HSCIC • Co-ordinates the development and adoption of national clinical and administrative datasets. The policy drivers for this arise from the need for better information at all levels of the NHS organisation and other users of NHS data • NHS Datasets Service commissioned to lead this work together with healthcare professionals, professional bodies, IM&T professionals and relevant clinical policy leads within DH • This work recognises the increasing importance of and input required from Social Care and system suppliers
What is a Dataset? • A sequenced list of individual data items each with a clear label, definition and set of permissible values (codes and classifications) from which sets of data can be compiled.
Purpose • Enable the same standard of information to be generated across the NHS, independent of the organisation or system that captures the base data. • Enable healthcare and other professionals to measure & compare the delivery and quality of care provided and to support them in sharing information with other care professionals.
Support for NHS ‘Business’ Objectives • To manage clinical services, clinical processes or organisations. Requires the continuous development of information standards and information to monitor conformance to service standards, to targets or outcomes. • To support Continuous Quality Improvement. This requires knowledge of local performance and comparison to expected benchmarks or agreed standards of care. • To facilitate ‘seamless’ care delivery. This requires the sharing of information which is clear, unambiguous and of high quality (i.e. based on agreed definitions and standards).
Uses • Support the implementation of clinical guidelines, best practice and National Service Frameworks (NSFs). • Define the output standards for secondary 'business' requirements such as monitoring of services, research and analysis. • Enable analysis of need to support the commissioning and planning of services.
Collection of Data • Data recorded directly at the point of care as part of the operational care process. • Data extracted as part of normal data transfer process. • Some data derived from more detailed information held in local clinical systems or patient records.
National Datasets for Diabetes care • The National Diabetes Dataset project has produced: • Diabetes Continuing Care Reference Dataset (DCCR) • approved as national standard by ISB March 2005 • Diabetic Retinopathy Screening Dataset • developed in conjunction with Retinopathy Screening Programme and submitted to ISB for approval • Diabetes Paediatric & Adolescent Care Dataset • Diabetes Footcare Dataset • Developed in conjunction with NICE Footcare Guidelines group
Diabetes Continuing Care Reference Dataset (DCCR) • A comprehensive reference dataset covering all routine review data for diabetes care, including patient education and psychological well being • It brings together information and data requirements to support four current national priority workstreams: • National Diabetes Audit (NDA) • Diabetes indicators of GMS QOF • Diabetes chapter of ‘Better Metrics’ performance management • DiabetesE service management tool • The fifth national priority workstream (Retinopathy screening) is supported by a separate but linked dataset
National Diabetes Dataset • Further work on Diabetes data has resulted in definitions for: • Cardiovascular and Renal complications in Diabetes • in conjunction with CHD and Renal Dataset projects • Pregnancy in Diabetes • in conjunction with Maternity Dataset Project • Diabetes At Risk groups • also included in DCCR reference dataset
Further InformationAlison Roe, Project ManagerCraig Watson, Business AnalystHSCIC Datasets Service http://www.icservices.nhs.uk/datasets/pages/default.asp