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TheProject_19092012x.pp x

TheProject_19092012x.pp x. TheProject. TheProject. Renal Units. Labs. TheProject. Renal Units. Labs. TheProject. Renal Units. Labs. NHSBT. Other National data. TheProject. Renal Units. RPV. Labs. UKRR. SRR. RaDaR. NHSBT. BAPN. Other National data.

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TheProject_19092012x.pp x

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  1. TheProject_19092012x.ppx

  2. TheProject

  3. TheProject RenalUnits Labs .

  4. TheProject RenalUnits Labs .

  5. TheProject RenalUnits Labs NHSBT OtherNational data .

  6. TheProject RenalUnits RPV Labs UKRR SRR RaDaR NHSBT BAPN OtherNational data .

  7. hard to managewasteful summarised data can’t be recovered perpetuates errors some unknown >> biaseg RRT start date & unit lost in transferinflexible…

  8. TheProject RenalUnits Patient sees~all their data RPV Labs UKRR Warehouse SRR RaDaR?10-20 gps NHSBT BAPN RPV type data transfer,at least daily OtherNational data .

  9. TheProject RenalUnits Patient sees~all their data RPV Labs UKRR Warehouse SRR RaDaR?10-20 gps NHSBT BAPN OtherNational data .

  10. TheProject RenalUnits Patient moves renal unit RPV Labs UKRR Warehouse SRR RaDaR?10-20 gps NHSBT BAPN OtherNational data .

  11. TheProject For discussion:How a UK renal data warehouse be organised and managed securitydata and clinical governancemanagement – coalitionanonymisation/named dataencryptiondata transfer - ?XML Schema – HL7 data validation ?practical on anonymous data, where to do flexibility – allow new fields = data items to be added by userInclude meta data …

  12. TheProject Granular data Include fields for meta data … date time relative time (pre dose, post dialysis … ) sample if not obvious (venous, arterial blood, venous side of dialyser )result unit of measurement (eg Hb g/L, g/dL, mmol/L) reference range assay method (eg PTH)

  13. TheProject Granular data Diagnoses and procedures – Store at highest level required by initiatorAggregate later where requiredUse SNOMED CT terms & codes (UK Renal Terminology Committee)

  14. TheProject Derived data:store raw data where possible/ practicalderive resultseg BMI, URR …

  15. TheProject InvolvesPatientsRenal units already keen to join Registries (UKRR & SRR)Renal AssociationRPVRaDar Groups Renal IT industriesData GovernanceNHS, DoH, ISD

  16. TheProject Can we develop a project that better supports what we do:Care for patientsQuality improvement- units could devolve some QI to the registries prompts (Tx list), trends (infections) …Run the servicesResearch – basic and epidemiologyTeach & learn

  17. .

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