Welcome to My Home

1. Welcome to www.My Home As you’ve probably heard, Governor Quinn has announced the closure of Murray Developmental Center as part of the Rebalancing Initiative.

2. You are also probably already hearing all sorts of information about the closure process. This web site is here to help you with understanding the impact on your life and to assist in navigating through the process.

3. What do we mean by Rebalancing? It means using existing resources more efficiently • To improve services • To serve more persons in need • To expand community capacity and linkages

4. I bet you have many additional questions. To better answer your questions it would help to know more about you. Please select which group represents you. • A guardian/parent or family member • A service provider • A media outlet

5. As a guardian/parent or family member nothing is more important than the safety of your loved one at Murray. Therefore we have created a new & dynamic transition process for developing service & supports that is • personalized • family focused • valued based • offering maximum control • supporting individual preferences It’s called: Active Community Care Transitions (ACCT).

6. The ACCT process begins with an independent, comprehensive needs evaluation. This evaluation is key to the design of a customized support plan for your loved one. The evaluation starts with the person as the center of the conversation. Trained and experienced facilitators engage the person, their family/guardian and SODC staff, in a discussion that serves as the blueprint to design the appropriate supports they will need to be successful.

7. Since the information discussed is highly individualized and personal, the result is the development of what is titled a Person-Centered Plan (PCP). Through discussion and conversation at the meeting we learn the following from participants about the person: • dreams and goals, • fears, • strengths and desires, • hopes and aspirations, • successes and failures, • what works and does not work, • personal preferences, • interest, • what excites the person • and more

8. In addition, the Independent Comprehensive Evaluation Process consists of: • Careful analysis of the current and past records • Securing of new or additional clinical information, data and recommendations for support by experts in various areas of need. Active Community Care Transition (ACCT)

9. So what do we do with all this information and data for this comprehensive evaluation process? • The information from the PCP, individual assessments, housing, employment and community preferences are synthesized into an individual budget support plan narrative . • In addition, an individual planning budget (IPB)is prepared to support the various needs identified in the individual support plan. • The completed individual budget support plan narrative is then reviewed by the SODC Inter-Disciplinary Team (IDT) and others. This step serves as a check and balance to ensure nothing is overlooked. Active Community Care Transition (ACCT)

10. Now that we know what is needed and determined what it is going to cost, the next step is to see who may be interested in developing the customized supports and services. • We have a talented pool of fully licensed providers across the state who have committed to participate in the ACCT process. • Providers who possess strengths in areas necessary to meet your loved ones individual's needs will be identified and contacted. Active Community Care Transition (ACCT)

11. You are probably wondering if you have some say in choosing the provider. • Absolutely! We encourage provider exploration. • Visit and/or research identified potential providers and get to know them. Our team can help set that up. • We also encourage potential providers to visit Murray to meet your loved one, review various assessments and records and meet with team members. • After the initial potential provider exploration, you and your loved one will be asked to confirm interest in a provider and the provider to confirm continued interest in potentially serving your loved one. Active Community Care Transition (ACCT)

12. So where is your loved one going to live? • During the PCP process, you will have shared the community of preference and the type of living environment you and your loved would like. • Based on the information shared, the selected provider will either offer you an opportunity in an existing home they operate or develop a entirely new home based on the needs identified in your loved ones individualized support plan. • The majority of the transitions will be to new homes developed for your loved one. Active Community Care Transition (ACCT)

13. A few thoughts about Community of Preference • The ACCT Team will work with family/guardians to develop homes and supports in communities of preference whenever possible. • Our desire is to identify a community that would be within a 30-45 minute travel time from the family/guardian. • A key element for success is not just the physical community of preference but the community supports that are available, including access to medical, dental and psychiatric care. • The most important thing is that this is determined with each person individually. Active Community Care Transition (ACCT)

14. A few thoughts about the Home • The intention through the ACCT process is to develop smaller settings of no more than four persons. • Each person will have their own bedroom. • If there are circumstances in which alternatives need to be considered they are addressed on a case by case basis. Active Community Care Transition (ACCT)

15. So who are the people who will be supporting your loved one? • Providers will work with the ACCT team in determining the profile of skills and attributes of the potential staff. • We encourage the person and families/guardian to engage in the interview and selection process of potential staff or support personnel. • All staff that are hired are required to go through hours of training and a comprehensive background check. Active Community Care Transition (ACCT)

16. Once the home and services are developed as outlined in the individual support plan, a pre-transition visit is scheduled. • There are two types of visits. • Pre-placement • Pre-transitional • So what is the difference in the two? Active Community Care Transition (ACCT)

17. A pre-placement visit • Assumes your loved one is going to be moving into an already existing home. • The purpose of the visits is to determine if your loved one is a good match with the existing services, staff, other residents and home. • These visits may consist of the following: • Short visits for several hours • Dinner visits • Overnight stays Active Community Care Transition (ACCT)

18. A pre-transition visit • Your loved one visits the newly developed home designed around their specific needs. • The home selection, potential roommate(s), staff and services are assembled with your loved one needs in mind. • This type of visit is designed to adjust supports and services that have been developed based on the individual support plan. Active Community Care Transition (ACCT)

19. A few additional things to know about pre-transition visits • Pre-transition visits are individualized and based on the needs of your loved one, which can last a few days or several weeks. • During the pre-transition visit, significant monitoring, feedback and support is provided to the home to ensure a successful transition. Active Community Care Transition (ACCT)

20. Once your loved one, you, and the provider feel comfortable with the assembled supports and service the discharge process begins. Active Community Care Transition (ACCT)

21. The discharge is just the beginning step in your loved ones new life. • We want to make sure your loved one continues to do well. • Therefore we have established extensive follow-along services. Active Community Care Transition (ACCT)

22. What do we mean by extensive follow-along? • During the first eight (8) weeks in the new community setting, your loved one will receive weekly face-to-face visits from Division of Developmental Disabilities staff in the Bureau of Transition Services (BTS). • If the individual experiences transition difficulties, the BTS representative will continue to conduct face-to-face on-site visits with the individual. • During these visits, staff will review medication changes, dietary changes, daily activities, social functioning and behavior patterns. Active Community Care Transition (ACCT)

23. What do we mean by extensive follow-along? • In addition, during the first four (4) weeks in the new community setting, your loved one may also receive weekly face-to-face visits from the Pre-Admission Screening Entity (PAS)/Independent Service Coordination (ISC) agency. • During the following eleven (11) months, PAS/ISC agency staff will visit on a monthly basis. • Visits include review of individual's satisfaction, safety, well being and other concerns. Active Community Care Transition (ACCT)

24. The goal of the ACCT process is not simply to change the location or address of your loved one. • It is to offer the needed community supports and services that will allow your loved one to be close to their family, to participate in their community and to lead an ordinary life. Active Community Care Transition (ACCT)