1 / 12

EUROPA UOMO The European Prostate Cancer Patients Coalition

EUROPA UOMO The European Prostate Cancer Patients Coalition. L. Denis Monaco, October 6,2006. Europa Uomo: Who?. Coalition of 18 National/Regional Prostate Cancer Patient Organisations. Legal , non government (NGO). Membership : Legal registration Patient support activities

fionnuala
Download Presentation

EUROPA UOMO The European Prostate Cancer Patients Coalition

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. EUROPA UOMOThe European Prostate CancerPatients Coalition L. Denis Monaco, October 6,2006

  2. Europa Uomo: Who? Coalition of 18 National/Regional Prostate Cancer Patient Organisations. Legal, non government (NGO). Membership: Legal registration Patient support activities Agree manifesto OCA, 2006

  3. Manifesto (I) 1. To find ways and means to promote quality of life for prostate cancer patients and their families. 2. To promote the dissemination and exchange of evidence-based information on prostate cancer. • To promote prostate awareness and appropriate diagnosis and prognosis. Keywords: QoL, Evidence-based, Awareness OCA 2006

  4. Manifesto (II) 4. To emphasise the need for appropriate early detection. 5. To campaign for provision of and access to optimum treatment. 6. To ensure quality supportive care throughout and after treatment. • To promote multiprofessional quality care and appropriate medical infrastructure. Keywords: Early detection, optimal treatment, quality & multiprofessional care OCA, 2006

  5. Manifesto (III) 8. To acknowledge good clinical practice and promote its development. 9. To ensure that all men fully understand any proposed treatment options, including entry into clinical trials and their right to a second opinion. • To promote the advancement of prostate cancer research. Keywords: Good clinical practice, clinical trials, prostate cancer research OCA, 2006

  6. HOLISTIC MEANS:Optimal Medical Treatment We need information, education. Multiprofessional expertise and patience required. + Patient Centered Care We need psychological, emotional, social support / contact required. OCA, 2006

  7. The Lost Patient Contradictory information (doctor, media, friends) A lot of experts Statistics Outcomes not comparable ? Unflexible guidelines Evidence Based Oncology Loss of personality in the process OCA, 2005

  8. Doctor/Patient Partnership Expectations: One shop info stop Clear choice and control Time to decide Outcomes and QoL Access to clinical trials Contact multiprofessional team Results: Informed, involved patient Prostate passport Patient satisfaction Patient defined QoL Discipline and political support Overall progress medical care OCA, 2006

  9. Europa Uomo Partnerships European School of Oncology 2004 International Consultation Urological Diseases 2004 European Coalition Cancer Patients 2004 European Association of Urology 2005 International Prostate Health Council 2005 European Society Medical Oncologists 2006 International Union Against Cancer 2006 Global Prostate Health Coalition 2006 OCA, 2006

  10. Our immediate request Support/create patient organisations Early diagnosis vs. overtreatment Carefull choice of primary treatment based on available prognostic factors Prevention metastatic disease Sustained hope of HRPC treatment OCA, 2006

  11. The survival of the Hippocratic oath and patient respect in the complexity of medical technology and multiprofessional care remain an integral part of our civilization and medical progress. OCA, 2006

  12. Europa Uomo Secretariat OCALange Gasthuisstraat 35-372000 Antwerp – BELGIUMTel.: +32.3.223.53.54Fax.: +32.3.223.53.52E-mail: louis.denis@skynet.beWeb: www.cancerworld.org/europauomo

More Related