Social Care and Health Intelligence: Moving Forward

1. Social Care and Health Intelligence Going Forward.

2. The context For Adult Social Care The vision for adult social care is laid out in Putting People First, a document that spells out the direction for social care for the next decade and beyond. • At its heart are four main themes: • Universal Services • Access to the right services at the right time • Information and advice available to all • Preventive Services • Promoting longer-term independence without the need for • interventions • Enablement and assistive technology • Choice and Control for people receiving services and their carers • Shaping services to meet people’s needs • Building social capital • Recognising the needs of carers • Community cohesion and social inclusion

3. What does this mean for the Information Agenda? • Providing information to the general public to promote healthier lifestyle choices, • Providing information for service users to inform self-directed support, advocacy and brokerage, • Sharing information between Local Authorities to enable them to benchmark progress and manage the transition, • Sharing information outside LAs – with PCT’s, with other partner organisations eg Housing Agencies, with regulators and central Government, • Transforming the performance frameworks to better match the new priorities and make best use of the data held by LA’s/PCT’s

4. Where are we now in Social Care? • Only a small percentage of the social care information collected by LAs is shared at regional or national level – and the notion persists that social care is ‘data poor’ • LAs use different systems and providers to collect and hold information – speaking the same language but in different dialects? • No structured or standard way in which information is collected and stored • Many gaps in the information needs of different organisations • Information agenda out of alignment with requirements of Personalisation? • Imbalance between local and national priorities in performance monitoring • Numerous responsible bodies/organisations involved in different aspects of information – new Strategic Information Programme Board for ASC

5. Where must we be in 2011 – at the latest? • Accessible public information resources • Structured care records accessible by the user • Consistent recording of data for assessments, commissioning and case management • Information standards for data recording and storage to enable interoperability and sharing across social care and health • Operational sharing of performance data between LAs and the centre via a data warehouse, facilitating benchmarking and informing national policy • Performance frameworks and national indicators better aligned to shared priorities and supporting policy direction

6. Taking this forward…. In developing a new, coherent strategy for adult social care and health information, we need to consider how best to: • make better use of the information held by LAs – facilitate data sharing for benchmarking locally and nationally • establish clear, common standards to underpin information systems – make the same thing mean the same to everyone • be clear about the requirements of the centre – for policy, assessment and regulation • align the different performance and assessment frameworks with each other and with the transformation agenda • reduce reporting burdens – collect once and use numerous times (COUNT) Maintaining the status quo is not an option!

7. Standards: A Pre-requisite • Interoperability • Developing them & implementing them • Content & technical • The Information Standards Board for Health and Social Care • The NHS Number as first exemplar

8. The information core • Common Assessment Framework (CAF) • Social care/NHS record structures • Data dictionary – for Social Care and NHS • Service user access to care record • Mapping flows across organisations

9. THE NATIONAL ADULT SOCIAL CARE INTELLIGENCE SERVICE. (NASCIS) • The First Key Step • Proof of concept • Project Board established and Project Manager appointed /continued

10. NASCIS (continued) • 8 Workstreams Single repository/Data from other sources/Analytics/Governance/Library/ Customer Service model/ Back office/End stage road-map • To launch July 2009 (Single repository, Analytics, Library)

11. Still outstanding…. • Needs of service users – inform decision-making, measure outcomes and effectiveness • Wider perspective on information sharing – non-personal and personal data (a strategic review of this is underway) • Across the board links with NHS – health and social care interfaces, Darzi pathways • Managing the interface with childrens’ services – transition • Information needs to support commissioning, JSNA

12. Why will this be different? • Political agenda • Citizens’ expectations • DH policy drivers (Information Strategy Board) • Chief Information Officer for DH • Informatics across health and social care now a priority