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Disclosure. Neither I nor any member of my immediate family has a financial relationship or interest with any proprietary entity producing health care goods or services related to the content of this CME activity.
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Disclosure • Neither I nor any member of my immediate family has a financial relationship or interest with any proprietary entity producing health care goods or services related to the content of this CME activity. • My content will not include discussion/ reference of any commercial products or services • I do not intend to discuss an unapproved/ investigative use of commercial products/ devices
Mind the Gap F. Bruder Stapleton, MD President, American Pediatric Society Professor and Chair, Department of Pediatrics University of Washington School of Medicine
What is the “Gap” in Pediatrics Race and Ethnicity
“Mind the Diversity Gap” • “Mind”: a verb I chose for two meanings: • 1. “To pay attention to” • (recognize the gap) • 2. “To care about, to object to” • (in this case to take action in response to)
Diversity and Inclusiveness • Ethnicity • Race • Socioeconomics • Age • Sexual orientation • Experiences • Physical abilities • Gender • Lifestyle • Spirituality • Political views • Context: school, work, social set, community, organization, geography, family • Religion
Our patients 55.7% http://www.census.gov/hhes/socdemo/children/data/sipp/well2009/tables.html
Our patients: Now and Future http://www.census.gov/hhes/socdemo/children/data/sipp/well2009/tables.html
Profile of our teenagers http://www.census.gov/hhes/socdemo/children/data/sipp/well2009/tables.html
Elementary school years http://www.census.gov/hhes/socdemo/children/data/sipp/well2009/tables.html
The growing diversity http://www.census.gov/hhes/socdemo/children/data/sipp/well2009/tables.html
U.S. Children 12-17 years http://www.census.gov/hhes/socdemo/children/data/sipp/well2009/tables.html
U.S. Children 6-11 years http://www.census.gov/hhes/socdemo/children/data/sipp/well2009/tables.html
U.S. Children Under 6 years http://www.census.gov/hhes/socdemo/children/data/sipp/well2009/tables.html
States with majority of “minority” children • Arizona Mississippi • California New Mexico • Florida Nevada • Georgia Texas • Hawaii Washington, DC • Maryland
Finding a “place” for Under-Represented-in-Medicine Pediatricians to help shape the care of all children • “A place is not a place until • people have been born in it, • have grown up in it, lived in it, • known it, died in it – have • both experienced and shaped it.” • - Wallace Stegner. A Sense of Place
The Pediatrics Diversity Gap • Why is it important to address the gap? • Diseases and conditions • vary with populations
Increase in Pre-HTN & HTN in US Children (8-17y) 1988-2002 Din-Dzietham et al, Circulation, 2007
What happens to these obese children? • 1 in 3 children born in US will develop Diabetes Mellitus in their lifetime • 1 in 2 MINORITY children will develop Diabetes Mellitus in their lifetime Narayan KM et al. JAMA. 2003 Oct 8;290(14):1884-90. Mokdad AH et al. JAMA. 2004 Mar 10;291(10):1238-45.
Why isn’t there more researchfocused on these issues • Inclusion of minority communities in clinical trials. • Number of investigators from diverse communities. • Funding of awards from under-represented minority applicants by NIH appears to be lower.
NIH Success for black scientists • Black R01 applicants 10% less likely to be funded than white scientists by NIH. • Minority R01 applicants: 16% Asian, 3.2% Hispanic, 1.4% Black and 0.05% AI/AN. • Odds of receiving R01 was improved for all applicants if having received training grant. • Ginther D. Science 2011
The Pediatrics Diversity Gap • Why is this important? • Diseases and conditions • vary with populations • 2. There is an economic impact
Costs in dollars and cents • Eliminating health disparities for minorities would have reduced direct medical care expenditures by $229.4 billion for the years 2003-2006. • Between 2003 and 2006, 30.6% of direct medical care expenditures for African Americans, Asians, and Hispanics were excess costs due to health inequalities. • Eliminating health inequalities for minorities would have reduced indirect costs associated with illness and premature death by more than one trillion dollars between 2003 and 2006. • The economic burden of health inequalities in the United States. Joint Center for Political and economic studies. Washington DC, 2009.
The Pediatrics Diversity Gap • Why is this important? • Diseases and conditions • vary with populations • There is an economic impact • Quality of care is less in • minority populations
Safety and Quality of Care • Spanish-speaking patients had a two-fold risk of a severe adverse event compared to English-speaking patients. • Interpreters did not alter the risk. • Cohen A et al. Are language barriers associated with serious medical events in hospitalized pediatric patients? Pediatrics 2005; 116:575.
A Quality Gap 2009 NHDR Distribution of changes over time in racial, ethnic, and socioeconomic disparities for selected core quality measures, 2000-2002 to 2005-2007
The Pediatrics Diversity Gap • Why is this important? • Diseases and conditions • vary with populations • There is an economic impact • Quality of care is less in • minority populations • Trust in providers is a challenge
A healthy “place” for all children • “Neither the country or society…can be healthy until we…acquire the sense, not of ownership, but belonging.” • - Wallace Stegner
Challenges of Trust • First year medical students found to have implicit preference for white patients. • JAMA 2011 • Pediatricians were also found to have implicit preference for adult European-Americans compared to adult African- Americans. This preference was associated with perceived compliance. Med Care 2008 • 3. African-American parents perceived greater partnership if treated in a community health center compared to a hospital or private practice. J Pediatr 2011.
The Pediatrics Diversity Gap • What is APS doing? • Task Force on Diversity and Inclusiveness • June 2011- November 2011 Elena Fuentes-Afflick, MD, MPH Task Force Chair
Task Force Members • Jose Cordero, MD, MPH • Phyllis Dennery, MD • Danielle Laraque, MD, MPH • Fernando Mendoza, MD • Leslie Walker, MD • Ex officio: • Judy Aschner, MD • Bruder Stapleton, MD
New APS Mission Statement • The mission of APS is to advance academic pediatrics. • APS will accomplish this mission by promoting pediatric research and scholarship, serving as a strong and effective advocate for academic pediatrics, recognizing and honoring achievement, and cultivating excellence, diversity, and equityin the field of pediatrics through advocacy, scholarship, education, and leadership development.
A New APS Value has been added to our Value Statement • We believe that: • Advancing academic pediatrics improves child health by preventing disease and eliminating health disparities • Diversity, equity, and inclusion are essential values for academic pediatrics, pediatricians in training, and the practice of pediatrics • Advancing pediatric research improves health across the lifespan, from infancy through adulthood
What we as leaders can do • Carry the message of “Mind the diversity gap” in all our leadership venues. • Study how to create an inclusive culture.
What we as leaders can do locally • University of Washington Department of Pediatrics mission statement: • Through excellence, innovation, and collaboration, we will improve the health of all children and adolescents and reduce inequities by educating the pediatric and physician leaders of the future, advancing research, advocating for children and providing the nation's best primary and specialty pediatric clinical care. In partnership with our health care and academic institutions, we are committed to a diverse and inclusive faculty who can reach their personal and professional goals in a collegial environment. 2012 revision
What we as leaders can do • Carry the message of “mind the gap” in all our leadership venues. • Study how to create an inclusive culture. • Get involved with the increasing number of diverse minority medical students and introduce them to pediatric careers.
Although some improvement, a long way to go to close the gap First-Year Enrollees to U.S. Medical Schools Percent of total matriculants
What we as leaders can do • Carry the message of mind the gap in all our leadership venues. • Study how to create an inclusive culture. • Get involved with the increasingly diverse minority medical students to encourage pediatric careers. • Make diversity a priority during searches, when appointing committees locally and nationally, and listening to our minority patients and colleagues for advice to improve our culture.
As leaders in Pediatrics, let’s make eliminating the diversity gap a priority