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The European Perfusion Registry : A Work in Progress

The European Perfusion Registry : A Work in Progress. Luc Puis , ECCP Ian Johnson, AACP Else Nygreen , ECCP Pia Sprogøe , ECCP Tim Jones, MB BS, MD, FRCS . Disclaimer. I declare having no conflict of interest. Importance of Registries. To measure is to know. Practice

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The European Perfusion Registry : A Work in Progress

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  1. The EuropeanPerfusionRegistry: A Work in Progress Luc Puis, ECCP Ian Johnson, AACP ElseNygreen, ECCP Pia Sprogøe, ECCP Tim Jones, MB BS, MD, FRCS ICEBP - AMSECT 2011 San Antonio

  2. Disclaimer I declarehavingno conflict of interest ICEBP - AMSECT 2011 San Antonio

  3. Importance of Registries To measure is to know Practice Best Practice ICEBP - AMSECT 2011 San Antonio

  4. Importance of Registries ICEBP - AMSECT 2011 San Antonio

  5. Importance of Registries ICEBP - AMSECT 2011 San Antonio

  6. ExistingRegistries ICEBP - AMSECT 2011 San Antonio

  7. ExistingRegistries ICEBP - AMSECT 2011 San Antonio

  8. ExistingRegistries Whynotadhere? – Several issues • heterogeneous data betweenregistries • descriptiveprocedural data • no risk stratification, nooutcome • cost • noor low number of perfusion parameters in cardiacsurgery databases ICEBP - AMSECT 2011 San Antonio

  9. Setting up a Registry Long and labor-intensive workwhichrequires: • people, thatneed coming together, money • dataset and medium forcollection • motivation and trust to submit data • qualitycontrol and errorreporting Safety of data and privacy issues • statistical processing • publication of results (public/benchmarking) ICEBP - AMSECT 2011 San Antonio

  10. Setting up a Registry To avoid to having all countries to go throughthis: And having to put themtogether later anyway… ICEBP - AMSECT 2011 San Antonio

  11. Setting up the EPR Gatheringpeopletogether: Ian Johnson, AACP ElseNygreen, ECCP Pia Sprogøe, ECCP Tim Jones, MB BS, MD, FRCS Luc Puis, ECCP ICEBP - AMSECT 2011 San Antonio

  12. Ideally… We’re all treating the samepatients… The benefit for the patient is ourcommoncause… ICEBP - AMSECT 2011 San Antonio

  13. Ideally… We’re all treating the samepatients… ICEBP - AMSECT 2011 San Antonio

  14. Ideally… Benefits of suchcollaboration… • largenumber of cases • addedvalueforsurgeons • legion of data submitters • access to extended data forperfusionists • avoidance of double collection • more powerful database BETTER CARE FOR OUR PATIENTS ICEBP - AMSECT 2011 San Antonio

  15. What have we donesofar? Mission Statement ICEBP - AMSECT 2011 San Antonio

  16. What have we donesofar? Mission Statement ICEBP - AMSECT 2011 San Antonio

  17. What have we donesofar? RegisteredCharity – judicial background ICEBP - AMSECT 2011 San Antonio

  18. Whatwillit look like? EACTS AdultCardiacSurgery Database • active plans forweb-based database • static submission dynamicsubmission • (online/upload) • addperfusion parameters to it (samepatients) • participationwouldbefreeforparticipants ICEBP - AMSECT 2011 San Antonio

  19. Whatstillneeds to bedone… Structure of EuropeanPerfusionRegistry ICEBP - AMSECT 2011 San Antonio

  20. Whatstillneeds to bedone… Structure of EuropeanPerfusionRegistry • Who • chair, secretary, treasurer • foundingmembers • notrestricted • Tasks • daily management of Charity • funding – financial management • communicationwithparticipants and partners ICEBP - AMSECT 2011 San Antonio

  21. Whatstillneeds to bedone… Structure of EuropeanPerfusionRegistry • Who • perfusionists, surgeons, anesthetists • statistician • epidemiologist • … • Tasks • dataset • qualitycontrol / errorreporting • statistical processing • publishing of reports ICEBP - AMSECT 2011 San Antonio

  22. Whatstillneeds to bedone… Structure of EuropeanPerfusionRegistry • Who • countries • centers • individuals • NOTrestricted to Europe • Tasks • comply to membership / bylaws • bring in the (correct) data • read reports • changepractice to best practice ICEBP - AMSECT 2011 San Antonio

  23. Next steps… There is still a long way to go… ICEBP - AMSECT 2011 San Antonio

  24. Dataset ICEBP - AMSECT 2011 San Antonio

  25. Dataset What do you want to achieve? Areas of Risk Outcome Bleeding LCOS LOS - … Inflammation Antico OrganInjury Morbidity Transfusion Mortality Identify parameters that have aninfluenceon these areas • heparine • protamine • Hct • Hb • RBC • Plts • FFP • … • … • coating • cardioplegia • hemofilters • open/closed • PSB managmnt • … • … • … • cardioplegia • inotropes • … • … • … • ventilation • ICU • complicat • death • … • … ICEBP - AMSECT 2011 San Antonio

  26. Risk Scores ICEBP - AMSECT 2011 San Antonio

  27. Risk Scores ICEBP - AMSECT 2011 San Antonio

  28. Risk Scores ICEBP - AMSECT 2011 San Antonio

  29. Risk Scores ICEBP - AMSECT 2011 San Antonio

  30. Risk Scores ICEBP - AMSECT 2011 San Antonio

  31. QualityImprovement ICEBP - AMSECT 2011 San Antonio

  32. DendriteClinical Systems Ltd. www.e-dendrite.com ICEBP - AMSECT 2011 San Antonio

  33. DendriteClinical Systems Ltd. www.e-dendrite.com ICEBP - AMSECT 2011 San Antonio

  34. DendriteClinical Systems Ltd. www.e-dendrite.com ICEBP - AMSECT 2011 San Antonio

  35. BelSECT 13th Symposium • September 29th 2012, Brussels • SimulationSessions, September 28th • gathering of three EU simulationgroups • focus on teamtraining, scenario writing and assessment ICEBP - AMSECT 2011 San Antonio

  36. ThankYou ICEBP - AMSECT 2011 San Antonio

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