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Nada Savitch, Innovations in Dementia Deborah Brooks, Trent DSDC

Involving people with dementia in the development of AT Guide – an online tool to support decision making around assistive technology. Nada Savitch, Innovations in Dementia Deborah Brooks, Trent DSDC Stephen Wey, York St John University. What we would like to cover today.

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Nada Savitch, Innovations in Dementia Deborah Brooks, Trent DSDC

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  1. Involving people with dementia in the development of AT Guide – an online tool to support decision making around assistive technology Nada Savitch, Innovations in Dementia Deborah Brooks, Trent DSDC Stephen Wey, York St John University

  2. What we would like to cover today • The AT Guide concept • Methods for involving people with dementia in its development • Lessons learnt about design and engagement

  3. www.atdementia.org.uk

  4. AT Guide concept • ATdementia website established and useful But… • People with dementia don’t find traditional website navigation easy • AskSara tool – easy to use but not appropriate for people with dementia • A meeting of minds

  5. In 2009 the organisations Trent DSDC in partnership with Innovations in Dementia CIC and the Disabled Living Foundation secure 3 year funding from the Department of Health to develop an guided self-assessment support tool:

  6. Topics on AT Guide • Getting up, washed and dressed • Making meals and drinks • Getting out and about • Keeping busy • Keeping in touch • Going to bed and getting up at night

  7. Listening to people with dementia • Tips and advice for other people with dementia • relative merits of different types of assistive technology • feelings about the ethics of some technologies • Refine the language used in the guide • Ensure that images used were helpful and not distracting or confusing • Ensure that the design of the tool was easy to use

  8. People with dementia at the heart of the project • Member of the reference group • Informing the focus of the project • Testing • Language • Questions • Layout • Design

  9. Making sure people are involved • Meetings that suit individuals • Using existing groups and supporters • Focussing on people’s strengths • Using a variety of methods • Adapting existing protocols

  10. Some methods • Individual semi-structured interviews • Focus groups • Reviewing existing information sources • Card sorting • Think aloud • Paper prototypes

  11. Our findings • Getting over the stigma • Use of language • Use of images • People’s real experiences

  12. Getting over the stigma • “Warning not barring” • “Giving freedom and peace of mind” • “Try to avoid the bad things” • “Focus on the positive” • “Little plastic things to help NOT symbols of your independence disappearing”

  13. Language is important • “Wandering” • “Forget” • “Sometimes/usually/often” • Clear questions • Exact words • Meaningful examples

  14. The importance of language Have you ever got lost? Are you worried about getting lost?

  15. Using images

  16. “Woman – having her photo taken. Brilliant smile – going down an escalator. Meeting someone she likes or someone’s talking a photo who she likes” “It’s a lady – taking something .. You’ve got the same situation here. Use one half – a woman. Is she carrying a trowel? Are those files?” “She has dementia, but a life – she’s doing her shopping. It represents the two parts of her brain.” “Someone out shopping”

  17. Real experiences

  18. Thank you • Help us to improve the tool further: • Go to www.atdementia.org.uk • Click through to the AT Guide • Use the tool • Complete the online poll and feedback questionnaire Nada SavitchInnovations in Dementia CICnada@innovationsindementia.org.uk

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