Patient and Families Following Medical Harm

Patient and Families Following Medical Harm Health Care for All Webinar Linda Kenney March 12, 2014

We all have stories…

Creation of MITSS 2002 – Medically Induced Trauma Support Services (MITSS), Inc. Mission: To Support Healing and Restore Hope to patients, families, and clinicians following adverse medical events.

Working Definition Medically Induced Trauma is an unexpected outcome that occurs during medical and/or surgical care that affects the emotional well being of the patient, family member, and/or clinician(s). Adverse Event • Medical Error • Unanticipated Outcome • Known complications • Harm due to medical intervention

Trauma Trauma is a part of the human experience. The trauma response occurs when a person experiences or witnesses a sudden, terrible, and unexpected event which temporarily destroys his/her ability to cope. Trauma is essentially a normal response to an abnormal or extreme event.

Patient & Family Brochure

What Patients and Families Want Following Adverse Medical Events • Transparent communication in real time • An apology or an acknowledgement • Organizational response to prevent recurrence • Support (unique for each individual)

Patients and families may feel a mix of emotions following an adverse medical event, including: • Sadness • Anger • Mistrust • Isolation • A desire to connect with others • Guilt • Shame • Fear • Grief/Loss • Grateful to survive • Ambivalence

Multifaceted Consequences • Further medical follow-up as a result of event • Chronic pain • Financial strain • Job loss/increased work stress • Child care/parenting burdens • Marital conflict • Death of a loved one

MITSS Patient/Family Group

Early on…. • MITSS realized if hospital’s weren’t acknowledging these events, how were going to provide support. • MITSS started to get more involved in what was called “Disclosure and Apology”

MACRMI • Involved early on • After the PFAC’s look at documents, we send it out to the patients and families who have utilized MITSS services • They see things through a specific lens

MITSS Resources & Contact Info. www.mitsstools.org – Downloadable Items • Patient/Family Brochure • LEND Document • Common Reactions to Trauma • Self-care Tips • Child’s Reaction to Trauma Linda Kenney lkenney@mitss.org 617-232-0090 www.mitss.org

Patient and Families Following Medical Harm

Patient and Families Following Medical Harm

Presentation Transcript

Patient Satisfaction Survey Following Urodynamics

Medical Patient Assessment

Medical Errors and Patient Safety

Communicating effectively with patients and families following stroke.

Patient Centered Medical Home and The Medical Neighborhood

Medical Education and Patient Safety

Patient Medical Records

Doctor-Patient Relationship and Medical Professionalism

INTRODUCTION: REUNION FOR FAMILIES FOLLOWING DEPLOYMENT

Patient-Centered Medical Home and SBHCs

The Patient Experience Following Medical Harm

Strengthening Families to Keep Children Safe from Harm

Medical Interpreters and Patient Navigators

Patient Confidentiality and Electronic Medical Records

Patient Safety and Medical Errors

PATIENT MEDICAL RECORDS

Inheriting Illness: genes, families, and the patient role

Medical Errors and Patient Safety for Medical Educators

Medical Record, Patient Education, Patient Rapport

A Patient Perspective on Patient Harm

Inheriting Illness: genes, families, and the patient role