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Personal Legacy Library Service

Personal Legacy Library Service. This service has developed out of a need to address the end-of-life concerns of a patient population lacking structured opportunities to author their own life legacies. . What is it?.

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Personal Legacy Library Service

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  1. Personal Legacy Library Service

  2. This service has developed out of a need to address the end-of-life concerns of a patient population lacking structured opportunities to author their own life legacies.

  3. What is it? • A "legacy building" micropublishing service that extends to patients in end-of-life care a venue for expressing their stories • Each patient composes a book that can be printed in flexible quantities via on-demand technology (Shutterfly) • Those who consent to have their "legacies" shared, will have their books added to a community collection • Held once weekly on-site for three hours between September and June • With the support of healthcare providers, the librarian as facilitating conversations between patients and family member(s) to invite introspection and create positive memories • Also providing instruction (knowledge) in self-publishing and navigating the Shutterfly interface to empower patients and their families to use these tools meaningfully • Program as optional • Must be cognizant of cultural and spiritual diversity • Writing as not a culturally relevant tool for all people

  4. The Community Served: Patients: • Individuals facing death as frequently more deliberate in their intent to find purpose and meaning for their lives • Need tangible opportunities to re-affirm their sense of self-worth and remain engaged in the community Family: • Need opportunities to meaningfully connect with their loved ones in end of life to support the grieving process • Reluctant to discuss death and dying with loved one. Both patient and family as needing safe and supported space to open up to one another and normalize their fears Healthcare Providers: • Limited in their access to the resources, time and technical expertise needed to invite introspection and facilitate meaning-making when treating advanced illness

  5. New Librarianship: • This service is an example of "embedded librarianship"--librarians get out of the libraries and interact with the communities they serve • Rather than focusing on artifacts, librarians will be more focused on developing conversations with and among members • Librarians are an appropriate choice to act as a bridge between community stories and the capturing of these stories as they are should be trained in and have a high level of digital fluency, as well as skills to be adaptable and flexible in new situations

  6. Advancing the Mission: • Mission: To improve society through facilitating knowledge creation in their communities (Lankes, 2011) • Facilitating: By ensuring four elements of facilitation as identified by Lankes--access, knowledge, environment and motivation--are in place • Knowledge Creation - Seen in both the final product (a legacy book) and the knowledge of the tools and process which participants will acquire • Communities • Improve society - Benefits to various parties

  7. Challenges & Implications: • Policies • Micro-level: Liasing; Initial policy implications and relationship building • Macro-level: Long-term policy making at multiple levels to help facilitate transfer of knowledge • Operations and Management • Working alongside ancillary groups (especially, other civil society institutions) • "Politics"

  8. Challenges & Implications: • Resources • Financial and other Material Resources • Environment • Context-Specific Design • Participatory/Cooperative (Cross, 1982) and Value-sensitive approach (Friedman, 1996) • Ethics and Provisions • Privacy issues that may come to bear before or after the project is complete • Intellectual Property

  9. Justification: • Personal Legacy Library service assists families in expressing their end of life concerns in a safe and supported space • Invites introspection and facilitates meaning-making • Librarians skillfully train and mentor healthcare providers, patients and families in authoring their stories from beginning to end • Libraries make these "legacies" accessible by setting aside space to share community stories

  10. Anticipated Outcomes: • Patients: Provides patients with structured opportunities to shape their own life legacies, explore their fears, mend relationships with their families, and resolve unsettled business • Patients who express their feelings fair far better in tolerating physical suffering • Families: Collaboratively create a book of meaningful memories that can be a source of strength and comfort after their loved ones death • Society: Increase mortality awareness and encourage the bereaved and volunteers to open up to their end-of-life concerns and discuss death and dying

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