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What is Usher syndrome?. A leading cause of deaf-blindness, Usher syndrome is an inherited condition that results in hearing loss and a progressive loss of vision from Retinitis pigmentosa (also called RP)The hearing loss is thought to be congenital, and ranges from moderate to profound.Historical
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1. Usher Syndrome and You Gail MacKinnon The Coalition for Usher Syndrome Research Mother, Brandon age 8, Jacob (Usher syndrome) age 5 Andrea Patton Bionic Ear Association Mother, Elliott (Usher syndrome) age 3