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Crystal B. Spivey, MPH, DrPH March 9, 2004 Supported by: R24MD00151 NCMHD

Remnants of the Tuskegee Syphilis Study Effects on University Freshmen: Yet a Possible Barrier to Research Participation?. Crystal B. Spivey, MPH, DrPH March 9, 2004 Supported by: R24MD00151 NCMHD. Co- Authors. Tina Simpson, MD 1 Tina Vazin, PhD 2 M. Kim Oh, MD 1 Karyn Gunn, PhD 2

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Crystal B. Spivey, MPH, DrPH March 9, 2004 Supported by: R24MD00151 NCMHD

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  1. Remnants of the Tuskegee Syphilis Study Effects on University Freshmen: Yet a Possible Barrier to Research Participation? Crystal B. Spivey, MPH, DrPH March 9, 2004 Supported by: R24MD00151 NCMHD

  2. Co- Authors • Tina Simpson, MD1 • Tina Vazin, PhD2 • M. Kim Oh, MD1 • Karyn Gunn, PhD2 1University of Alabama at Birmingham, AL 2 AL State University, Montgomery, AL

  3. Introduction • African Americans lag behind the overall population on virtually all health status indicators • African Americans’ decision to participate in research is a difficult one • Tuskegee Syphilis Study (1932-1972)?

  4. Purpose of the Study • Identify clinical research interest of young college students • Identify perceived barriers to research participation

  5. Methods: Setting • Historically Black College University in the Southeastern U.S.

  6. Methods • Cross-sectional survey • Conducted Fall 2003 (Sept-Oct) • Chi-square method of analysis

  7. Survey Instrument • Participant Demographics (race, gender, and age) • Level of interest in STD/HIV and pregnancy prevention clinical trials • Perception of barriers

  8. Study Population Characteristics • N = 691 • 95% African Americans (less than 1% White, 3% more than one race, and 1% did not categorize ) • 57% Females • 16-24 years of age • Mean age 18

  9. Interest in participation in clinical trials Level of Interest

  10. Perceived Barriers

  11. Lack of Interest

  12. Confidentiality Issues

  13. Mistrust

  14. Impact of the Unethical Aspects of the Tuskegee Syphilis Study

  15. Impact of the Tuskegee Syphilis Study Level of Impact P-value = .020

  16. Gender Differences Level of Impact P-value < .001

  17. Association between Tuskegee Syphilis Study and other study barriers • Lack of Interest p-value < .001 • Confidentiality p-value< .001 • Mistrust p-value< .001

  18. Conclusions • Tuskegee Syphilis Study continues to influence African Americans willingness to participate in clinical research • Confidentiality Issues very important • Must build a foundation to develop trust

  19. Confidentiality Issues Impact of the Tuskegee Study Level of Impact I P-value < .001 Importance of Confidentiality

  20. Mistrust- Cannot trust the researchers Impact of the Tuskegee Study Level of Impact P-value <.001 Mistrust of researchers

  21. Just not interested in being in a research study Impact of the Tuskegee Study Level of Impact P-value < .001 Lack of interest

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