'Our Story‘

1. 'Our Story‘

2. How the ACLT survived the funding cuts

3. Presented By • Orin Lewis (pictured with ‘Soul Mate’ Beverley De-Gale) • Co-Founder and Chief Executive of the African Caribbean Leukaemia Trust (ACLT) • Step-father of former Leukaemia sufferer Daniel De-Gale

4. Agenda • The Personal story • Balancing Act and Major Decision • Barriers to donating (Myths, Fears & Taboos) • Picture memorial to Brave Sufferers • Daniel De-Gale’s story • Profile of Sufferers in need of a matching donor • Long term Aims and Objectives of the ACLT • Major Financial Crisis (SOS - Save the ACLT Campaign Appeal) • Recognition • Summary and Conclusion

5. Daniel De-Gale • 1 week away from death when diagnosed with Leukaemia in April 93 • 2 years of Chemo, 1st Relapse in Dec 1995, 50% chance of survival • Over 1 in 250,000 chance of finding a Donor, lack of Black donors • 2 years of Chemo, 2nd Relapse (Sep 1998), 25% chance of survival • Huge Public Campaign to find a donor

6. The Balancing Act & Helping other families • Profile of other Black sufferers are publicised as Beverley and Orin speak to other families • Setting up Networks for families in the same situation who need support and familiarity • Helped other families to smile again, try and turn an extremely negative situation into a proactive response • Life between hospitals and home and trying to bring a sense of normality to family life (bringing up little Dominique) • Balancing work duties and running the ACLT • Recruitment drives & family commitments • Utilising work skills in voluntary ACLT role

7. Working Full time for the ACLT • Head & Heart decision by Beverley and Orin to run ACLT on full time basis from 2003 • Raising Awareness via Presentations to Public/Corporate/Religious/Educational/Overseas establishments, Fundraising , becoming a Phlebotomist, Press Campaigns, etc • Assisting families with regards to asking the right medical questions, possible diet changes, education, fitness, a positive frame of mind & planning ahead in relation to Chemotherapy, Radiation or Stem Cell/Bone Marrow treatment • Giving guidance & a shoulder to cry on in moments of understandable sadness

8. ACLT Structure

9. ACLT Profile • Launched in June 1996 by Beverley De-Gale & Orin Lewis • Raises awareness against myths, fears & taboos about donating • Black community is galvanised by Daniel struggle to find a donor • Volunteers assist to raise Ethnic nos. onto Bone Marrow Register • Charity raises Black numbers from 580 to 36,000 in 15 years • Saved 32 lives by finding matching bone marrow donors such as Actor David Harewood, Footballer Clive Wilson, etc • Beverley and Orin win prestigious Pride of Britain 2006 Award • ACLT is charity for the Notting Hill Carnival in 2007 & 2008 • Beverley & Orin on judging panel for Pride of Britain 2007

10. Pride of Britain 2006

11. Proposed future ACLT Structure (Funds dependant)

12. SAVE THE ACLT CHARITY APPEAL

13. SOS: Save the ACLT Campaign • We returned to the office after the 2010 Xmas break raring to go, but started 2011 on the worst possible footing, devastating news about our lack of long term funding • Rejected at final stage of a 3 year (£400k) Big Lottery Grant, only sufficient funds to survive to cover salaries and rent until March 2011 • Urgent public plea to raise £80K by the end of March 2011 to avoid closure! • Needed to dispel the long held public viewpoint that the charity is well supported by the NHS, Anthony Nolan, Blood Service, Celebrities, Public donations etc…. • Sadly, this is not the case, we receive no government funding or funding from major supporters or philanthropic investors. 2009/10 (Aug - July) Financial year income was £227,000 leaving a -£33,000 balance shortfall rolling into 2010/11 (Aug – July) • Virtually all income comes from small ad hoc public donations + proactive and reactive fundraising initiatives e.g. events, sport & challenge events, entertainment events etc. 2010/11 (Aug – July) Financial year overall Income up to Xmas 2010 was -£34,000. The revenue from these activities was diminishing very FAST.

14. The Plan to save the ACLT What were we going to do about it? • ACLT office team held an emergency meeting to strategize. • Contacted volunteers & everybody we could to take action and assist us with our emergency strategy. Only £50,000 in account to cover salaries and rent. • And publicly appealed via Social Media, Ethnic press, TV, Radio, word of mouth, etc that we really needed the Black and wider Community’s help too... Ideas about how individuals and organisations could help • We appreciated that these are difficult times for everyone, but truly believed in the community spirit that has brought us together over the years would prevail • As the saying goes ‘a mighty river starts with a single drop,’ If everyone made a contribution in some way, however small, we could raise £80K or more in time • 5,000 people give £5 a month for 3 months = £75,000 + Gift Aid = £96,000 • Cheque’s, Cash donations - in person,Fundraising at school, college, university, work, church or via individual /organisational networks, club nights, etc • Recommend a key contact to help our emergency fundraising campaign • Create an online ACLT Fundraising page, where donations can easily be made

15. How can individuals help ACLT? Ways that people could raise funds to help ACLT? • Online & Offline Financial donations • Club Night’s, Book Sales, A Draw or Raffle, Themed Dance, Fashion show, Fitness workout, Golf day, Marathon run, Sport related events, Quiz night, Sponsored events (Swim, Walk, Bike ride), Search & shop online, eBay, Leave a legacy, Mobile Phone Charity Recycling Scheme, Gift Aid, etc Ways that companies could help ACLT? • Corporate donations, Gifts in Kind, Sponsorship payments, Secondment, Cause-Related Marketing, Legacy Giving, etc