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Genetics and Ethics

Genetics and Ethics. steve hughes. Ethical undergrowth. Rights responsibilities and goals Institutional oversight: standards Slippery slope Promises and momentum Ethics informing science practice; science informing ethical positioning Naturalistic fallacy Expertise and social order.

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Genetics and Ethics

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  1. Genetics and Ethics steve hughes

  2. Ethical undergrowth • Rights responsibilities and goals • Institutional oversight: standards • Slippery slope • Promises and momentum • Ethics informing science practice; science informing ethical positioning • Naturalistic fallacy • Expertise and social order

  3. Technology landscape • pigd; embryo selection; saviour siblings • Rare traits • Common but polygenic traits • Big science: • HGP • GWAS • Personal Whole genome sequencing • Gene banks

  4. Technology landscape • Genetic diagnosis • Rare traits • Common but polygenic traits • Big science: • HGP • GWAS: large cohorts • Personal Whole genome sequencing • Private testing companies 23&me • Gene banks

  5. issues • Genetic essentialism • Genetic exceptionalism; privacy; counselling • The right to know/not know • Identity; identity politics; the biological(genetic) citizen (navas and rose) • Public health; postcode essentialism • Personalised health • Promissory momentum • Distributive justice • Commutative justice

  6. Broadly propagandised applications of genomic knowledge • Understanding disease states; hunting for cures (more DNA banks - annonymised) • Anticipatory diagnosis of disease states, PIGD, mental health, “at-risk” catagories/identities • Relatedness within and between populations: ethnic identities? • Similarities and differences among primates, evolution, what it means to be human; essence? • Individualised medicine: a new take on identity?

  7. Thomas Bock

  8. Genetic essentialism Genetic exceptionalism; privacy; counselling The right to know/not know Identity; identity politics; the biological(genetic) citizen (navas and rose) Public health; postcode essentialism Personalised health Promissory momentum Distributive justice Commutative justice Genetic testing Pigd, embryo selection saviour siblings Rare traits Common disorders –v- polygenic traits Big science: HGP GWAS Personal Whole genome sequencing DNA banks Co-articulation

  9. Genetic essentialism • Genetic exceptionalism; privacy; counselling • The right to know/not know • Identity; identity politics; the biological(genetic) citizen (navas and rose) • Public health; postcode essentialism • Personalised health • Promissory momentum • Distributive justice • Commutative justice

  10. Ethical undergrowth • Rights responsibilities and goals • Institutional oversight: standards • Slippery slope • Promises and momentum • Ethics informing science practice; science informing ethical positioning • Naturalistic fallacy • Expertise and social order

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