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Palliative Care

Palliative Care. National Kaumatua Service Providers Conference Thursday 7 November 2013 Vanessa Eldridge, Māori Liaison, Mary Potter Hospice. Kaupapa ō tēnei wāhanga. Whakapapa of Mary Potter Hospice What is Palliative care? Māori Engagement

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Palliative Care

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  1. Palliative Care • National Kaumatua Service Providers Conference • Thursday 7 November 2013 • Vanessa Eldridge, • Māori Liaison, Mary Potter Hospice

  2. Kaupapa ō tēnei wāhanga • Whakapapa of Mary Potter Hospice • What is Palliative care? • Māori Engagement • Things to consider in developing relationships with Hospices • Future of palliative care

  3. The ModernHospice Movement

  4. The Venerable Mother Mary Potter

  5. Mary Potter in Wellington • Formally established 1979 by Little Company of Mary based in Calvary Hospital, Newtown • Hospice bases in Newtown, Porirua and Paraparaumu • Services: home based, inpatient, day units • 80% patients with cancer - colorectal and lung cancer most common • 20% respiratory, motor neurone, kidney, co-morbidities.

  6. Palliative care… WHO • Palliative care is an approach that improves the quality of life of patients and their families facing the problem associated with life-threatening illness, through the prevention and relief of suffering by means of early identification and impeccable assessment and treatment of pain and other problems, physical, psychosocial and spiritual.

  7. Dr Brian Ensor “Find the causes Fix the fixable Palliate the unfixable”

  8. Māori Liaison • Help the patient and whānau get to a level of ‘comfort’ about the transition to the veil • Prepare Hospice people to give Māori whānau the care they deserve, how and where they want it • Work with whānau, hapu, iwi and Māori community to get best care for Māori whānau.

  9. Pallia = Korowai

  10. Co-ordinating care wherever the patient may be

  11. Community Care

  12. Day Hospice

  13. Inpatient Care

  14. Care alongsideTe Ao Māori

  15. MāoriEngagement

  16. MāoriEngagement

  17. The futurefor Palliative Care • Increasing demand for palliative care • Workforce shortages • Funding uncertainty • Limited access to services • Inadequate facilities

  18. The future “Recent thinking has emphasised the need for community development to restore the abilities of families and communities to be able to look after their dying. To achieve this, end of life services will need to change their emphasis from a servicedelivery model towards initiatives that enhance family, neighbourhood and community capacity. This will mean an increase in resourcing community development and a new mindset for service providers.”

  19. Future for Mary Potter • Hospice holds a central role locally – reference point • Future very different, time to think differently – innovation critical • Partnerships key to improve EOLC

  20. Future for Mary Potter • Greater investment in awareness – community participation & engagement • Develop models of care less demanding of resource – reach more with less • Drive to community settings – volunteers, local support

  21. What I need from kaumatua … • Wisdom • Kaupapa and Tikanga • Whanaungatanga • Counsel • Kōrero

  22. What I’m mindful of with Kaumatua • Protection from excited colleagues • Length and frequency of hui • Existing ‘workload’ of marae and whānau life • Being grateful for their time and contribution • … more selfishly, cherish these relationships, awhi my own identity journey…

  23. What you might be mindful of with Hospices • Structured organisations to service the whole community for FREE • Māori Kaimahi (if present) are diverse • Expectations are achievable and do-able • Staff may have a ‘fear of offence’

  24. What you might be mindful of with Hospices • Hospices should be tika and pono about the 3Ps • Palliative care profile within health industry • Hospices have a lot to learn from Māori

  25. Māori patient’s in Hospice need… • Te Reo Māori • Te Ao Māori ahua • Ngā kanohi Māori • Māori kai • Waiata and Karakia • Kōrero • Rongoā • WHĀNAU

  26. Any pātai? • Vanessa.eldridge@marypotter.org.nz • Ph: 04 2372308

  27. Reference • Circle of Care – Should Community development redefine the practice of palliative care?(Abel et al, BMJ, March 2012)

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