PPI in Collaborative Research REP Launch, 25 th May and 1 st June 2011

1. PPI in Collaborative ResearchREP Launch, 25th May and 1st June 2011 Albert Goddard SUCRAN, De Montfort University Jacqueline Smart Service User Development Officer MHRN Heart of England Hub

2. Who Are We • Albert Goddard. Member of Service User and Carer Research Audit Network (SUCRAN) • Overseas commissioning and planning, implementation and evaluation of SU and Carer led research/audit within Leicester and Leicestershire as set by the management committee of Peoples Forum and Genisis. • Supported by Dr Jim Doher, De Montfort University

3. Who Are We • Jacqueline Smart. Mental Health Research Network (MHRN) Heart of England • Topic Specific Network • Cover geographical area of West Midlands, Leicester, Northampton and Rutland • Work in partnership with service users, carers interested in PPI. • Support members of the research community

4. Initial Steps • MHRN held several seminars and identified the needs of our members. • Captured ideas for research: Personalisation and Self Identity Physical impairment and mental health (focusing on hearing impairment) Advocacy

5. The Journey Begins • Expression of interest gained from SUCRAN • Fit their aims and objectives Audit against Mental Health Charter Carers Audit Services User Experience of Mental Health Services Advocacy

6. Rational • Service Users stated their concern that both activity and outcomes of services were variable across the region.  This was confirmed by a knowledge of inconsistencies within Leicestershire advocacy services. • Funding given by MHRN complemented the budget allocated for the work by SUCRAN (which was funded by City and County PCTs in Leicestershire)

7. Aims and Objectives • The impact upon and satisfaction of Service users • The impact upon and satisfaction of Carers • The impact upon and satisfaction of Advocates • The impact upon and satisfaction of Advocacy organisations

8. Aims and Objectives • The approach will be action research based as SUCRAN hopes the outcomes will have a direct influence on training, practice, policy and satisfaction, and will form the basis of a scoping exercise to consider the training and provision of advocacy services across the Midlands

9. Aims and Objectives • Establish the range and scope of advocacy services in the UK • Clarify the need for advocacy and its various manifestations • Set benchmarks and standards for training and education of Advocates • Identify the wants and needs of service users requiring advocacy • Measure to what extent wants and needs are being met by providers • Recommend essential terms of reference for organisations • Recommend role parameters for workers

10. Next Step • Once the recommendations have been established SUCRAN will seek funding to audit against the targets, and promote a sustainable development of roles and services, working with statutory, voluntary and independent providers together with those who commission and support services.

11. Service user led idea • Good working relationship. Shared good practice. Offer of external support and guidance • Costs shared (maybe not 50 -50! Every little helps) • Opportunity for service user members of MHRN outside LNR to be actively involved. • Opportunities for SUCRAN members to be engaged in research within larger geographical area.

12. Jacqueline Smart Jacqueline.smart@bsmhft.nhs.uk 0121 301 4341 www.mhrn.info